A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: lagbfn@gmail.com | 2014-06-24 10:24 | 3 Comments

My 19 year old daughtere was diagnosed with Juvenile Myoclonic Epilepsy shortly after she turned 16.  She had been having mycolonic jerks for about 1 year prior to having a full blown tonic clonic...

Created By: vanessamg | 2014-06-22 20:35 | 1 Comment

My partner has suffered from tonic-clonic seizures since childhood. He is now in his mid-30s. His epilepsy is controlled with medication (Tegretol). At night he has what seem like seizures (limbs...

Created By: daneflare6@gmail.com | 2014-06-18 08:10 | 1 Comment

I'm female, 17, and a couple of months ago now I had a grand-mal seizure, I'm going for an MRI next monday to see if it's anything they can see that's wrong. 

But a week ago today I was on...

Created By: joy as caregiver | 2014-06-08 05:52 | 0 Comments

My older sibling is in my care.

Does anyone else experience a similar situation?

My sister is 13 years my senior, yet, due to untreated seizures from the age of three to the age of...

Created By: Blueeyedkay | 2014-06-08 05:09 | 0 Comments

Hello, My name is Kayla and I work as a PCA at Children's. I am hosting a benefit on August, 1, 2014, to raise money for Camp Flame Catcher, which is a camp for kids with epilepsy. The benefit is...

Created By: akunknown24 | 2014-06-07 21:58 | 1 Comment

Hi everybody !!
wondering if anyone would know from experience or from some one else .
on high impact sports.
I snowboard , skateboard and I really like MMA.
I am curious...

Created By: shawnatwist@hotmail.com | 2014-06-05 13:05 | 1 Comment

My husband developed epilepy about 6 years ago. He is 51 years old and we think he may have been having simple partial seizures for some time before actual diagnosis. He has complex partials for...

Created By: BB8710 | 2014-06-04 03:39 | 1 Comment

Hello I am new to this site and although I'm not new to the whole epilepsy thing there is still a lot that is bothering me. I have been wondering other have been having the same problems or...

Created By: BB8710 | 2014-06-04 03:38 | 0 Comments

Hello I am new to this site and although I'm not new to the whole epilepsy thing there is still a lot that is bothering me. I have been wondering other have been having the same problems or...

Created By: FrustratedMom21 | 2014-06-02 22:14 | 1 Comment

My 21 yo daughter was diagnosed with epilepsy about 6 months ago after 5 months of not knowing what was going on.  She doesn't seize and the initial EEG came back negative.  We were pursuing the...

Created By: dtdintern | 2014-05-14 15:56 | 0 Comments

~~Are you looking for support, a good time, and creating new friendships? Deliver the Dream is a non-profit organization taking families with children or parents with epilepsy on a retreat the...

Created By: oreillylisa | 2014-05-13 18:26 | 0 Comments

~~Hi , Im wondering if anyone has any history of their child having myoclonic epilepsy? My son was diagnosed at 2yrs old as having benign myoclonus and then discharged , eeg did show abnormal...

Dad
Created By: taylori | 2014-05-04 15:42 | 1 Comment

hi. I've been trying to find a support group that deals with seizures and hopefully i've found the right spot. 

A short version of my dad's story is that last year he had an upper GI bleed...

Created By: andrewtwydell89@hotmail.co.uk | 2014-04-24 17:46 | 1 Comment

Hi all I'm new here from the uk seeking advice..

my father had a siezure in the night last week it was horrible scared my mum, all of us he was unconscious for about 30 minutes bit his...

Created By: ima_snaaake | 2014-04-19 01:30 | 6 Comments

hello all...

my 15 year old sister was recently diagnosed (its been a few months...i honestly cant think of what month or day...seems like too long...) with what...

Created By: lefemmefatale@gmail.com | 2014-04-18 12:57 | 1 Comment

Hello!

I’m 37 yrs old and since I was 12 yrs old I’ve always had issues with lights (strobe, bright lights..etc) also with rapidly changing intensities of light such as passing trees. When...

Created By: zombinacorpse@gmail.com | 2014-04-15 18:32 | 2 Comments

Hi there! My husband  has epilepsy and we're expecting our first son at the beginning of May. We've been trying to come up with a plan for how to deal with my husband's seizures in the event he's...

Created By: deke | 2014-04-14 11:29 | 5 Comments

18 year old nephew had a full blown seizure out of the blue. Never had one before. His dad said that he was burning up to touch while this was going on. He was hospitalized overnight and then...

Created By: dawnschmidt207@yahoo.com | 2014-04-13 17:20 | 5 Comments

My husband, who will turn 37 next month, was diagnosed with epilepsy 8 years ago. Ten years prior to his first grand mal, he had had a motorcycle accident that left him with scar tissue on his...

Created By: hale23 | 2013-11-18 12:50 | 1 Comment

So I have had epilepsy since I was six months old. I am now in my thirties and I have been in a relationship for the past eight years and we have two kids together, I recently had a seizure that...

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