Community Forum

A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: htjones93 | 2015-03-25 21:11 | 3 Comments

I was diagnosed with epilepsy when I was only a year old. I am now 21 years old, and still haven't gotten used to it. This forum is for anyone who needs help, or feels lost. If you have ever...

Created By: misseesu | 2015-03-22 20:49 | 1 Comment

In December I was scheduled for surgery. A week before my surgery my husband had his first seizure. We were in bed and he flew out and started shaking. He bit through his lip and was bleeding. I...

Created By: CStacy1 | 2015-03-02 08:03 | 1 Comment

I'm having trouble coping with my husband's epilepsy. He usually has partial seizures, they started last year. The doctors have no idea what's causing them, and all they're doing is increasing his...

Created By: photoaram | 2015-02-17 13:03 | 2 Comments

My little sister Irene was born on July 23, 1991. Prior to her third DPT shot, she began exhibiting “subtle episodes of eye fluttering” which our parents and pediatrician initially dismissed as...

Created By: sgwen1919 | 2015-02-02 22:21 | 0 Comments

I posted this fundraiser online to help give my dad who struggles with epilepsy the best birthday ever. He...

Created By: Kathy781 | 2015-01-31 18:00 | 1 Comment

Am I alone in how I feel about this? I live alone and have for several years. I am unable to drive with no means of transportation except for family and friends. I have a family member that tells...

Created By: 119567 | 2015-01-23 23:26 | 0 Comments


I'm 15 and my dad has had frontal lobe epilepsy since he was about 30. His triggers are hunger, stress, physical stress, and lack of sleep. I am writing for any suggestions/similar...

Created By: 119567 | 2015-01-23 23:25 | 0 Comments


I'm 15 and my dad has had frontal lobe epilepsy since he was about 30. His triggers are hunger, stress, physical stress, and lack of sleep. I am writing for any suggestions/similar...

Created By: FlorinClaudiu | 2015-01-12 03:56 | 0 Comments

Hello all,

I'm new here and desperate.

i'm the father of a 7 yrs old daughter.

She is disabled and has epilepsy since 1 yr old.

Last year we started Topamax , and she...

Created By: ingilizcekursu | 2015-01-09 07:31 | 0 Comments

5 brothers a good family

Created By: Grodo | 2014-12-13 02:34 | 4 Comments

Hello everyone,

I came with a question I've been asking myself for a few days ... maybe someone here can help.  

I work at an adult education center.There is a studentl there (age 28...

Created By: LandrethMN | 2014-12-10 15:56 | 1 Comment

Hi guys! I’m new to this website. I’m sorry in advance for this post being so long! I’ve had myoclonic jerks/twitches since I was about 8. Now I’m 21 and had my first tonic clonic seizure this...

Created By: vattempt | 2014-12-06 03:19 | 1 Comment

I have had epilepsy since I was 8. It has been over a decade and I have had ups and downs. My parents are overly protective of me well because I have epilepsy and secondly I am a girl.


Created By: | 2014-11-15 20:02 | 1 Comment

Because I love you, maybe you should know


I fell to the floor,

but learned to arise from a fall.

I learned nobody was there to understand at all,

I learned to...

Created By: letstalkaboutepilepsy | 2014-10-30 10:22 | 1 Comment

I have two friends who have epilepsy but do not want to tell anyone about it, which just proves that there still is stigma surrounding it... I do not have epilepsy but I don't understand why some...

Created By: Cynthia21 | 2014-10-28 00:32 | 0 Comments

My son is 6 years old he also has Down syndrome in the past 6 years he has had 3 seizures the first one was 3 years ago and the 2nd one was 2 years ago he didn't shake on them just blank stares...

Created By: Lana112 | 2014-10-18 15:50 | 2 Comments

Hi Everyone,

I need help with an issue concerning my one of my best friends. I've always known that she has occasional panic attacks, but she recently told me that she's been having ...

Created By: letstalkaboutepilepsy | 2014-10-17 09:13 | 1 Comment

This is a great place for people to get advice and connect with others who have epilepsy. Also, it is very important to educate not only friends and family of those living with epilepsy, but also...

Created By: | 2014-10-10 07:52 | 0 Comments
Created By: BRogers | 2014-10-06 19:57 | 0 Comments

Hey guys, 

I'm looking for a little advice with this one. I was recently diagnosed with epilsepsy (about two months ago) and my girlfriend was actually the one who urged me to go to the...

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