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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: stacie4171 | 2004-06-01 08:36 | 188 Views | 1 Comment

My 9-year old was diagnoised with Epilepsy in Dec. 2003. I am new to watching for more seizures because it is the staring kind. I was wondering if this sounds like a seizure to you. She was at a...

Created By: cmushibwe | 2004-05-30 05:27 | 978 Views | 25 Comments

Hi, I was first taken in a seizure 30-Jan-00 but never knew what it was, no doc has diagnozed me as having epilepsy. Yet I started taking my medicine 02-Sept-03 (Carbamazipine & Phernobabitone...

Created By: stopspucks88 | 2004-05-28 16:16 | 373 Views | 5 Comments

Hey...I'm new, I was wondering if there's any kind of support group anyone knows of for kids (teens especially) who have parents with epilepsy? I haven't been able to find anything...you all with...

Created By: tessasmom | 2004-05-19 23:09 | 260 Views | 3 Comments

After two years of Depakote and no seizures, my 7 yr old daughter was taken off her meds...six months and no noticable seizures later we had her "graduation" EEG only to find that during...

Created By: arwelyn | 2004-05-16 13:39 | 159 Views | 0 Comments

My stepdad's son has epilepsy since his childhood. Now he is 26 and he has horrible seizures. When we first met and we went to eat, he had one of his seizures. In that few minutes I decided to...

Created By: mona50009 | 2004-05-15 18:41 | 630 Views | 0 Comments

My mother, age 62, died face down in her pillow. The cause of death was "seizure disorder due to hypertension." This does not sound right to me. I had no idea she had a "seizure disorder" until...

Created By: cjad234 | 2004-05-13 19:03 | 601 Views | 2 Comments

Hi all, I was wondering whether or not the effects of marijuana on the brain can intefere with the effects of the epilepsy medicine Tegretol 400mg per day. I know grapefruit and alcohol have...

Created By: boruchgold | 2004-05-05 17:41 | 254 Views | 1 Comment

I observed the link between hot, humid air in the room and seizures. Situation improves when I open the window or turn on AC. Does someone have any observation of this?

Created By: shannon10 | 2004-05-05 17:30 | 3106 Views | 5 Comments

Does anyone have any knowledge of whether or not a person can have both of these? My 8 yr old son has frontal lobe epilepsy and from time to time has tics that show up on EEG as not seizures but...

Created By: dolphin329 | 2004-04-28 21:48 | 381 Views | 4 Comments

Hello to All, Myname is Renee and my son is 8 years old and was diognosed with epilepsy in Aug. 2003 which has made our life change greatly. He is currently taking Dilantin 50 mg two tablets...

Created By: sokpuppit | 2004-04-28 20:31 | 509 Views | 5 Comments

Hello, my name is Kristin and this my first time here. My 5 year old daughter has been diagnosed with childhood absence epilepsy, and yesterday was her first day on klonopin. She is a giggly...

Created By: ethansdad | 2004-04-27 14:46 | 181 Views | 0 Comments

How many of you have kids with extreme behavior changes that you believe are related to actual seizures or are true behaviors (i.e. head banging and slapping, agression) All we see with our...

Created By: shea30 | 2004-04-19 20:50 | 461 Views | 2 Comments

Hello, I'm new to this site. My daughter is 19 months old and started having temporal lobe seizures a couple of weeks ago. Her seizures have lasted 45 min to an hour before we've been able to...

Created By: sylvia627 | 2004-04-14 10:08 | 222 Views | 0 Comments

I am a 17 year old girl who started a unique program that allows kids to inrease awareness and raise money for epilepsy from their paid chores, part-time jobs, summer jobs. Over one year, I was...

Created By: annessister | 2004-04-12 12:05 | 323 Views | 2 Comments

My 23 year old sister was diagnosed with epilepsy when she was 8 years old. It is controlled by medication. For some reason, on occasion she will stop taking her meds and then within a week she...

Created By: picnupthepcs | 2004-04-10 02:07 | 275 Views | 1 Comment

My Dr. stopped allowing me to drive sence September of last year and in Michigan you have to be seizure free for 6 months on or off of medication. Needless to say I have been doing very well on...

Created By: aubertjmd | 2004-04-09 12:33 | 2544 Views | 14 Comments

I am a 25 year old woman with JME. Can any mothers can tell me about the types of medications they have taken while pregnant? Any discussion I have with my husband about having children is...

Created By: gonzalo_del_bono | 2004-04-06 13:01 | 352 Views | 1 Comment

Hi groupBeen with you all for a while now, its good to know there is support out there. Right better explain myself,I have experienced using Ambulatory EEG devices twice. Thats the kind of EEG...

Created By: ashar1 | 2004-04-05 16:08 | 391 Views | 2 Comments

Our second child, a girl, started having seizures in the third week after birth. Our pediatrician noticed it similar to a seizure and subsequent follow up by the pediatric neurologist with video...

Created By: seeker2 | 2004-04-02 22:30 | 233 Views | 0 Comments

FIND AN EPILEPSY DOCTORThe Epilepsy Foundation and the American Epilepsy Society have teamed up to create an online database for website visitors to find physicians with a special interest in the...

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