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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: mitzi525 | 2004-08-25 10:57 | 4276 Views | 28 Comments

Does anyone know if an Epilepsy ribbon, like the Breast Cancer Ribbon exists? I would like to get one made, and have the profits go towards Epilepsy research. I am looking for anyone who might...

Created By: karenzim | 2004-08-23 09:52 | 622 Views | 23 Comments

My kids are 9 and 5. We never really told them anything about my sz cuz there was no need to. Now there is, unfortunately, as my son had the honor and privilege of watching my grand mal in...

Created By: kbteachem | 2004-08-23 09:30 | 835 Views | 10 Comments

Our 2 year old son was just diagnosed with absence seizures.  He would stop playing (clue #1) and stare off into space for 3-15 seconds.  Then he would resume playing.  In one month's time this...

Created By: rodn50 | 2004-08-18 22:49 | 212 Views | 5 Comments

Recently my daughter's doctor put her on a relatively new medication called zonegran. I would like to get some feedback from anyone who has been taking this medication as to its effects on the...

Created By: ermeszter | 2004-08-10 21:50 | 1564 Views | 41 Comments

Hi, I am new to this comunity, and I need some support.In December 2002 my husband had a scheduled aneuryzm surgery. 3 days later he had a stroke, was in coma for 15 days, and paralized on his...

Created By: nicksmom | 2004-08-09 02:38 | 415 Views | 11 Comments

I have an 11 year old boy who was just recently diagnosed with epilepsy...cant remember the name of it, he doesnt have siezures only activity on the mri...anyway he has recently started to studder...

Created By: cody'smom | 2004-08-05 09:55 | 77 Views | 0 Comments

Hello my name is Alicia.  I have a 13 yr old son who was diagnosed with eilepsy 2 years ago.  I have read many books about the subject but I noticed they really did not touch on the emotions a...

Created By: ozepilepsy2004 | 2004-08-01 01:28 | 91 Views | 0 Comments

My name is Allison Clarke and I am conducting research under the supervision of Dr Christine Critchley and Dr Roslyn Galligan in the <?xml:namespace prefix = st1 ns = "urn:schemas-microsoft-com...

Created By: martinshane | 2004-07-26 17:45 | 367 Views | 5 Comments

Does anyone have a child around the age of 7 years who is on Frisium? Have you had success with this medication? What doses have been most successful? Any affects from this medication such as...

Created By: chriseric | 2004-07-21 11:49 | 172 Views | 1 Comment

I am a 35 year old female, former school principal. I am on Tegretol 1200 mg daily. I now have warning that it is coming and get onto oxygen which has made a world of difference. I recently had to...

Created By: limeridge | 2004-07-20 09:25 | 141 Views | 2 Comments

Hi there I am now only on 1 tablet left of tegertol. I have been on 1200mg of them I was cutting down half a tablet a month. I half only one half to go and I'm done them all. I will be on only...

Created By: ozepilepsy2004 | 2004-07-17 02:23 | 109 Views | 0 Comments

My name is Allison Clarke and I am conducting research under the supervision of Dr Christine Critchley and Dr Roslyn Galligan in the School of Behavioural Sciences, towards a Doctorate of...

Created By: limeridge | 2004-07-15 07:37 | 184 Views | 3 Comments

Has anyone at all had problems with keppra. I have been on this med for a good 9 months. The seizures have been kind of gone away that is a miricle right there. The only problems are leg falling...

Created By: coffee-428 | 2004-07-10 11:38 | 91 Views | 0 Comments

my problem is that every time i have a seisure is when i have a hormone change. i am currentliing takeingneurontin 300mg three times a day and am takeing carbamazepin 200mg three times a day. but...

Created By: pl9071 | 2004-07-10 08:23 | 1466 Views | 4 Comments

hi everyone,i'm new here, i have alittle boy 5 yrs old with seizures and have had then since he was 9 months old. We have tired more meds then i would have like to think about and we have had no...

Created By: leannethompson1 | 2004-07-09 20:33 | 117 Views | 1 Comment

i am epileptic myself but yesterday when i was talking to my best friend she was just staring at me then her arms started jerking. she dosent remeber anything can this be epilepsy. i do not know...

Created By: rlsmom | 2004-07-08 19:01 | 138 Views | 3 Comments

My daughter is 21 years old. Almost a year ago she began fainting. The more she did it we noticed prior to fainting she would "zone out", after coming to she would have head pain and not...

Created By: gkt | 2004-07-08 14:18 | 102 Views | 0 Comments

I've had epilepsy since I was a child. At 18, they assumed I'd outgrown it and I was able to go off medication and remain seizure-free for about 8 years (I think). About age 26 I started having...

Created By: picnupthepcs | 2004-07-06 17:54 | 114 Views | 1 Comment

Hi everybody,It has been awhile sence I posted or have even been to the group to read other posts. I am just wondering if anybody else feels the way I do. My problem is that I cannot remeber alot...

Created By: linalu | 2004-07-06 14:30 | 93 Views | 0 Comments

Hi, I recently posted about my 6 year old son who is taking Carbatrol.(We were the ones discussing our behavior problems and parental anxiety.) Jack's dosage was just upped and now it seems that...

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