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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: bake | 2004-09-08 23:18 | 169 Views | 0 Comments

Hello,Thank you for the opportunity to write to you on behalf of my Dear Dad who is a 74 year old semi retired Minister. Prior to the event which I will summarize my Dad was in GREAT health with...

Created By: bigsisterofepileptic | 2004-09-02 14:19 | 370 Views | 6 Comments

My sister was diagnosed with "seizure disorder" a few months ago.  I witnessed one at the hospital and her boyfriend saw a grand-mal.  She has been on 100mg of Dilantin 3x a day for the past 2...

Created By: beenona | 2004-08-31 23:50 | 236 Views | 3 Comments

My 7 yr old daughter was diagnosed just last week with epilepsy. They didn't tell me a type or classification for it. In reading the definitions of the different types I think she would be simple...

Created By: sandyr2202 | 2004-08-31 21:45 | 487 Views | 13 Comments

I am 16 and have uncontrolled seizures at the present time. My nero has tried numerous medications but has been unsuccessful. I am presently on another medication and seem to be responding well...

Created By: kbteachem | 2004-08-31 16:04 | 308 Views | 6 Comments

I am so overwhelmed right now!  My 2 year old has been taking Depakote for 3 weeks and there has been no change in the number of seizures that he has each day.  The doc has increased the dose 2...

Created By: pennyhickey | 2004-08-30 14:18 | 127 Views | 0 Comments

Bald spots from long term EEG?  Has anyone ever had this problem?  When my son was in the hospital they did the long term EEG. Its been 2 months since he's been out and he still has little bald...

Created By: amazinglucille | 2004-08-30 05:58 | 275 Views | 7 Comments

My son caleb is 5 . He started to have seziures at 3. He was diagnosed with 'Pediatric idiopathic epilepsy" .I'm worried he will go to school and get away from his teachers and wander around lost....

Created By: doksdarlin | 2004-08-30 05:51 | 339 Views | 8 Comments

I have Epilepsy.  I haven't had very many in recent years, but I have had one or two lately.  I'm not so worried about me, the problem is this....  My boyfriend has been having episodes that are...

Created By: kaayla | 2004-08-28 13:12 | 1236 Views | 5 Comments

I am trying to adopt and the adoption agency is very concerned about my seizure disorder. It is infrequent and I am lucky enough to not be on medication. I have a ten minute aura. The agency is...

Created By: mitzi525 | 2004-08-25 10:57 | 4919 Views | 28 Comments

Does anyone know if an Epilepsy ribbon, like the Breast Cancer Ribbon exists? I would like to get one made, and have the profits go towards Epilepsy research. I am looking for anyone who might...

Created By: karenzim | 2004-08-23 09:52 | 877 Views | 23 Comments

My kids are 9 and 5. We never really told them anything about my sz cuz there was no need to. Now there is, unfortunately, as my son had the honor and privilege of watching my grand mal in...

Created By: kbteachem | 2004-08-23 09:30 | 962 Views | 10 Comments

Our 2 year old son was just diagnosed with absence seizures.  He would stop playing (clue #1) and stare off into space for 3-15 seconds.  Then he would resume playing.  In one month's time this...

Created By: rodn50 | 2004-08-18 22:49 | 301 Views | 5 Comments

Recently my daughter's doctor put her on a relatively new medication called zonegran. I would like to get some feedback from anyone who has been taking this medication as to its effects on the...

Created By: ermeszter | 2004-08-10 21:50 | 2107 Views | 41 Comments

Hi, I am new to this comunity, and I need some support.In December 2002 my husband had a scheduled aneuryzm surgery. 3 days later he had a stroke, was in coma for 15 days, and paralized on his...

Created By: nicksmom | 2004-08-09 02:38 | 596 Views | 11 Comments

I have an 11 year old boy who was just recently diagnosed with epilepsy...cant remember the name of it, he doesnt have siezures only activity on the mri...anyway he has recently started to studder...

Created By: cody'smom | 2004-08-05 09:55 | 110 Views | 0 Comments

Hello my name is Alicia.  I have a 13 yr old son who was diagnosed with eilepsy 2 years ago.  I have read many books about the subject but I noticed they really did not touch on the emotions a...

Created By: ozepilepsy2004 | 2004-08-01 01:28 | 136 Views | 0 Comments

My name is Allison Clarke and I am conducting research under the supervision of Dr Christine Critchley and Dr Roslyn Galligan in the <?xml:namespace prefix = st1 ns = "urn:schemas-microsoft-com...

Created By: martinshane | 2004-07-26 17:45 | 511 Views | 5 Comments

Does anyone have a child around the age of 7 years who is on Frisium? Have you had success with this medication? What doses have been most successful? Any affects from this medication such as...

Created By: chriseric | 2004-07-21 11:49 | 265 Views | 1 Comment

I am a 35 year old female, former school principal. I am on Tegretol 1200 mg daily. I now have warning that it is coming and get onto oxygen which has made a world of difference. I recently had to...

Created By: limeridge | 2004-07-20 09:25 | 205 Views | 2 Comments

Hi there I am now only on 1 tablet left of tegertol. I have been on 1200mg of them I was cutting down half a tablet a month. I half only one half to go and I'm done them all. I will be on only...

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