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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: cjsmom | 2004-12-02 17:41 | 223 Views | 1 Comment

      Day 1 - CJ had a fever all day took 2 long naps but was eating and acting normal. When I got home at 6:30pm I took his temp it was 102.4 I gave him Tylenol. He eat, had Motrin at bed...

Created By: ryanmichelle | 2004-12-02 11:56 | 160 Views | 1 Comment

Hi My name is Michelle. My 15 month old son was diagnosed with epilepsy early this morning. We have an appointment to see a ped neuro here in town on the 17th, but I was wondering if anyone had...

Created By: learner | 2004-12-02 11:05 | 197 Views | 3 Comments

Hello All,I have been reading with interest the many posts on various topics.  Here is the quick version of my situation.  I am dating a fine woman who had many serious seizures every day from...

Created By: pretty-in-pink | 2004-12-02 07:24 | 241 Views | 4 Comments

Hello, I'm new here and need to vent!Last March my husband, 8 year old daughter and I were in the car heading to church. Our daughter started kicking the back of my seat and I had to tell her...

Created By: akelton | 2004-12-01 09:19 | 377 Views | 6 Comments

I am new to this site. My husband was diagnosed with JME when he was 13. Until recently (he's 29 now), he's averaged about one tonic-clonic (grand mal) seizure about every 15 months. However, in...

Created By: evelyn3213 | 2004-11-30 09:31 | 433 Views | 7 Comments

I AM A 37 YEARS OLD, MOTHER OF TWO. DIAGNOSED AS EPILEPTIC PATIENT SINCE 1983 AND USING DILANTIN (PHENYTOIN) DAILY. MY JOB PUTS ME UNDER A LOT OF STRESS. IS THERE ANY LAW THAT PROTECTS OR HELP...

Created By: momof1 | 2004-11-28 18:56 | 876 Views | 24 Comments

About 4 months ago now I had a seizure while driving. I hit a building. I woke up handcuffed in the back of a police car. I asked where I was. The officer told me I was drunk and had an...

Created By: jimbo747 | 2004-11-28 14:07 | 372 Views | 2 Comments

Hi,A relative of mine has a child of 8 years old. About 12 weeks ago he suffered a minor head injury whilst playing at school. He was taken to hospital and released.Since then, we have become...

Created By: mspellman | 2004-11-27 23:03 | 199 Views | 1 Comment

Hello all!  My 13 year old son had his first seizure in November 2003.  After 3 weeks of one seizure after another and numerous tests (EEGs, MRIs), a diagnosis was finally confirmed of right TLE...

Created By: jani | 2004-11-27 11:25 | 170 Views | 0 Comments

Many State's have a First Aid Council and also the Department of Health at the State Level and let them know of these problems with the restraints and that it is not necessary for someone who has...

Created By: usmale | 2004-11-27 11:25 | 2313 Views | 25 Comments

Can someone help me out here? This past weekend, I wound up at the hands of the EMTs of my area. My ride to the ER was a literal nightmare.My question is: Is it just this area of NJ or is it...

Created By: dozer206 | 2004-11-27 05:53 | 184 Views | 1 Comment

Long story, and I'm finding resources about heredity and epilepsy, but.....I'm receiving some preliminary information that my situation of seizures starting at 37 (fairly controlled) and the...

Created By: jnjross | 2004-11-26 12:25 | 151 Views | 1 Comment

my husband had childhood absence epilesy starting at age 6-7 and was given 500mg of dilantin per day till he was 12. his doctor remove him for it and said he had outgrown it. now he's 25 and i...

Created By: momof1 | 2004-11-25 19:54 | 1208 Views | 37 Comments

Today was a support group barbeque.I was planning to go. My daughter was going to come just so I wouldn't be alone. I have never been and was nervous. She changed her mind. I had a hard time,...

Created By: ozepilepsy2004 | 2004-11-24 02:27 | 129 Views | 0 Comments

Hi, <?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" />Would you like the community to have a better understanding of how it feels to be a young person living with...

Created By: mell | 2004-11-23 06:01 | 152 Views | 0 Comments

hi everyone, do you know of any instances when a baby or young child has injured itself during a seizure?especially in its cot(crib) and if yes how did you know that the young child or baby had an...

Created By: jnjross | 2004-11-23 01:36 | 152 Views | 0 Comments

my husband will stick his arms straight up in the air while asleep and rub his hands together is this common? but he does is twitching this like a jerk, like someone trying to catch themselves...

Created By: jnjross | 2004-11-23 00:28 | 316 Views | 1 Comment

i've hear alot of people with TLE also have problems with hormone imbalance, like low testosterone/ androgen that cause problems like infertility, low sperm counts. has anyone been treated for TLE...

Created By: jnjross | 2004-11-20 19:31 | 153 Views | 0 Comments

my husband had childhood absence epilesy starting at age 6-7 and was given 500mg of dilantin per day till he was 12. his doctor remove him for it and said he had outgrown it. now he's 25 and i...

Created By: momo3 | 2004-11-19 13:10 | 182 Views | 1 Comment

My 7-year-old daughter was diagnosed with BRE last Fall. She had one initial seizure and it was decided not to medicate her as yet. Last month she had two so we contacted the pediatric...

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