A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: gretchen | 2005-01-09 03:01 | 7613 Views | 46 Comments

I have TLEs and Generalized sz's.  I sz every day at least with drops, absences and jerks and then I have the odd CP or Jamais Vu or t/c and other things thrown in here and there.  I have...

Created By: birdwingblue | 2005-01-08 16:37 | 17786 Views | 33 Comments

hello,I'm wondering if anyone has any input or experience with this. My brother has epilepsy diagnosed in his early 20's. Seizures are mostly controlled by medication. However, he has episodes of...

Created By: torielis | 2005-01-06 21:24 | 556 Views | 7 Comments

I have just recently joined this group and it's a comfort to read about similar situations as my 14 year old daughter.  She began having seizures last June and has almost had them monthly since...

Created By: usmale | 2005-01-05 09:13 | 12862 Views | 29 Comments

This may sound strange, but I really need the input. My Nephew was recently diagnosed with BiPolar Disorder. The "Diagnosis" from what I understand was made simply from descriptions of his...

Created By: meghan555 | 2005-01-04 11:15 | 400 Views | 0 Comments

Hello everyone,  this is my first time to this site and i just want to share my story with you.I have a 4 yr. old daughter that at the end of Octrober started to wake up in the middle of the night...

Created By: ozepilepsy2004 | 2005-01-02 22:36 | 195 Views | 0 Comments

Hi, <?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" />Would you like the community to have a better understanding of how it feels to be a young person living with...

Created By: rc6002 | 2005-01-02 20:24 | 236 Views | 2 Comments

Hello:  I just found this site today.  What a great site and support.    My son (now 16) had a grandmall seizure in July out of the blue.  It happened at a very early (6:15 am) football practice...

Created By: mollybright | 2005-01-02 16:49 | 192 Views | 0 Comments

Thanks for the suggestions, masterdelve!  I have to talk with Claire's teachers when the winter holiday is over and I'll bring up your ideas in our meeting!  If anybody has other suggestions for...

Created By: livebyfaith | 2004-12-25 16:33 | 1055 Views | 4 Comments

My spouse and I are both 36 yrs old. he has had epilleptic seizures since he was around 5 years old and they were petite mal due to being thrown off the back of a bike and hitting his head on the...

Created By: jtkbrown1 | 2004-12-22 12:52 | 383 Views | 3 Comments

My daughter is 5 years old.  She has ahd seizures off and on since she was 3 months old.  The other day, she went to an amusment park and rode about 6 rides.  All of the rides were in a circular...

Created By: tammarrasmom | 2004-12-21 15:48 | 563 Views | 8 Comments

Hi, My name is Erika, and I have a now 2 month old baby girl that has been having seizures since even before she was born. I used to bring it up to the ob that she felt almost spastic in utero and...

Created By: klmahdi | 2004-12-18 23:05 | 298 Views | 0 Comments

Dear All,I have just joined this group to get some help or advice on my daughter's present condition.I am 24 yrs old and I live here in Djibouti. Last week, my 6 month-old daughter was having...

Created By: asteriatic | 2004-12-17 19:06 | 386 Views | 2 Comments

Hi - I'm 15 years old and while I'm not epileptic, my brother is.Over the past year or so, something a little weird has been happening to me. I'll be dreaming, and the more intense or faster the...

Created By: mjsmom | 2004-12-16 07:49 | 368 Views | 3 Comments

Hi Everyone...My daughter is scheduled to have resective epilepsy surgery on December 30th, after two years post-encephalitis refractory seizures (we've tried ALL the meds, three at a time and...

Created By: wendymartinez | 2004-12-15 19:06 | 425 Views | 4 Comments

Hi,I have a 4 year old with Epilepsy and was diagnosed about 2 1/2 months ago.  He has been taking Lamictal and seems to be controlled at 15mg 2x daily, so the Neuro says to leave him at 15mg...

Created By: rocking4epilepsy | 2004-12-14 00:07 | 650 Views | 6 Comments

Hi all, My name is Jen and I have been lerking on this site for ages and decided to join and post tonight. On March 9, 1998 (the day after my 32nd Birthday) I was made the happiest person in the...

Created By: ozepilepsy2004 | 2004-12-10 03:29 | 281 Views | 0 Comments

Hi,<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" /> I would like to sincerely thank the 97 people who have completed my survey to date and to encourage anyone...

Created By: kbteachem | 2004-12-09 03:55 | 571 Views | 4 Comments

My 2 year old son has been diagnosed with absence seizures during the past 3 weeks.  He has been on meds only for 2 weeks.  We are currently increasing the dose because the seizures are about...

Created By: teresanz | 2004-12-09 03:55 | 366 Views | 3 Comments

 

Created By: teresanz | 2004-12-09 03:55 | 322 Views | 1 Comment

They increased rapidly to 10x per day when he started on a very low dose of epilim.  Once he started epilim, the seizures stopped for a few weeks and then he started having grand mal/tonic clonic...

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