A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: sgandhi104 | 2005-02-11 00:37 | 7 Comments

HI!My daughter is 11 yrs.old & she has been diagoned last week with Myoclonic & atonic seizure.She has PVL(periventricular Lukomalacia)that means white matter in brain is dead..Due to this...

Created By: Anonymous | 2005-02-09 21:03 | 21 Comments

I was shocked yesterday when I read about someone's personal experience with auras on epilepsy.com. What was so shocking is that I experinced the EXACT SAME THING! When I was a teen, I distinctly...

Created By: purplegirl | 2005-02-09 17:08 | 13 Comments

Does anyone else have a spouse with seizures?-My dh has Grand Mals probably 3 or 4 times a year-he will usually have 3 of them  or so in a 36 hour period and then is out of it for just about a...

Created By: hedgage | 2005-02-09 10:57 | 5 Comments

This is the first time I've posted on any seizure site so forgive me if I ramble. My son Gage will be 3 in March. He was about six weeks premature but no major complications at birth. Some...

Created By: aelisemc | 2005-02-09 01:21 | 32 Comments

HI MY NAME IS ANN AND I AM NEW TO THIS SITE.  I AM LOOKING FOR ANYONE WHO HAS A CHILD WITH PROGRESSIVE MYOCLONIC EPILEPSY OR ANYONE THAT KNOWS OF A GOOD SITE WHERE I CAN GET  INFORMATION ABOUT...

Created By: staceychil | 2005-02-08 21:52 | 0 Comments

What exactly are children with special needs. By Stacey ChillemiWhat exactly are children with special needs. They are kids who have or who have a high risk for a chronic physical, developmental...

Created By: gretchen | 2005-02-07 15:36 | 8 Comments

A few weeks ago I read just the beginning of a post from a wife who stated her husband had feelings of either shrinking or becoming very small.I was going to post on that thread but I can't find...

Created By: kalaim | 2005-02-07 15:06 | 8 Comments

Hello, I'm new to posting here.  My daughter started having absence seizures about a year and a half ago.  She has had two bigger seizures it seems while under stress during her first EEG (as she...

Created By: willsmom | 2005-02-07 11:56 | 40 Comments

My Son has been suffering from Migranes from the time he was born. He was a colic-y baby and threw up daily for 2 1/2 years. Finally we had an allergist explain to us that he suffered from food...

Created By: corynn | 2005-02-06 00:22 | 14 Comments

My fiancee was diagnosed w/ partial complex seizures approximately 8 mos ago. We are on medicine #3 and have made little progress. I know I don't have to tell you all how frustrated we are....

Created By: bandcheryl | 2005-02-05 23:20 | 2 Comments

My seizures started out of the blue when I was 19. I've been struggling with them now for a little over three years. A couple months ago I actually decided to have the right side labectomy. (...

Created By: dreamss | 2005-02-04 12:14 | 2 Comments

Im new to this Forum and trying to find out some info about  Vegetarians and Epilepsy. My niese is going for her EEG and unsure what form she has but the Doctor did say Juvenile Epilepsy. The...

Created By: matthews_mom | 2005-02-04 09:51 | 7 Comments

Hi, I am the mother of a 3 1/2 yr old son who suffers from complex partial seizures.  In Dec his meds were changed from Trileptal to 50 mg of Zonegran daily, administered at night.  My main...

Created By: khardin | 2005-02-03 21:03 | 8 Comments

Hello, I'm 23 years old, a single mom and I have a 3 year old who was diagnosed with epilepsy at the age of 4 months. For the past 2 weeks I have had the most awful trouble with her in regard to...

Created By: stellaluny | 2005-02-03 09:58 | 1 Comment

Hi all... A brief background. My husband, Brian, developed epilepsy around the age of 21. Medication eliminated the grand mal seizures, but he continued to have complex partials (about 4 a month...

Created By: zilla | 2005-02-03 08:02 | 2 Comments

Hello all,First let me tell you a bit of history about my son Jordan. He was diagnosed after his first seizure two years ago, at 12 yrs old. We've seen no control, and his personality and health...

Created By: scout77 | 2005-02-03 05:10 | 3 Comments

my son is 1 yr old and has had 2 big seizures. The first one was during the night so we didn't observe it. We were told by our neurologist that seizures are not harmful. He had his second seizure...

Created By: lindasue | 2005-02-03 02:23 | 0 Comments

Hi,I am new to this board and I am really so sad. My son, who is 34 had several motocross (I hate motorcycles!) accidents. They were quite serious. Broken legs, arms, steel plates, screws, etc...

Created By: samcook04 | 2005-02-02 09:51 | 2 Comments

Hello everyone! I am new to the group, and I have a child who has an acquired brain injury due to viral encephalitis.  She has been having clonic/tonic seizures for over a year.   We have tried...

Created By: unlimitedvigor | 2005-02-02 09:28 | 3 Comments

Hello all, I am from Singapore living now in the US. My little brother who is 25 yrs old now had his first seizure when he was about 8 years old and he has been on medication since. The doctor...

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