A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: wannabeagooddaughter | 2005-02-27 17:09 | 8 Comments

Hi. My mother has been having seizures daily for the past two years. She mostly gets them when she's stressed out, but I've seen her have them when lights flicker. Her doctor keeps telling her...

Created By: elaine280 | 2005-02-26 14:20 | 1 Comment

Hi, my son Scott who's 3 has just been diagnosed with Lennox Gastaut Syndrome. His seizures started off with smal jerks, nodding of the head, eyes rolling upwards and they grew in size until he...

Created By: ashli | 2005-02-26 09:10 | 2 Comments

Hello.  My son was diagnosed with complex partial seizures almost 2 weeks ago.  He rides tricycles at his preschool during playtime (his favorite thing to do).  I began bringing in his bike helmet...

Created By: samhasbeensaved | 2005-02-24 13:29 | 3 Comments

I AM NOT EXPECTING A HUGE AMOUNT OF ANSWERS OR RESPONSE, YET I FEEL THAT AFTER A YEAR OF PURE HELL THAT I SHOULD VOICE MY OPINION AND TRY TO COME TO TERMS WITH WHAT HAS HAPPENED TO MY LIITLE BOY...

Created By: jvalent | 2005-02-24 09:01 | 6 Comments

My 3yr old just had three seizure like episodes in one day that only physically effected her eyes and sense of awareness.  The first one happened when she was sitting on the floor.  She fell over...

Created By: deleena | 2005-02-22 07:57 | 1 Comment

BruceHi, Thanks so much for all the information. Wow, I have learned alot since I posted. There is alot of great information on this website. First of all, I realize now illness has nothing to do...

Created By: jvalent | 2005-02-22 00:14 | 0 Comments

My 3yr old just had three seizure like episodes in one day that only physically effected her eyes and sense of awareness.  The first one happened when she was sitting on the floor.  She fell over...

Created By: purple | 2005-02-21 23:19 | 0 Comments

My 13 yr old son has nighttime seizures also....everynight now for over 18months!!!!!  He's been on Topomax and now Keppra Klonopin and he is still having seizures.  He's had 2-24 hr EEG studies...

Created By: shiana2004 | 2005-02-21 23:19 | 18 Comments

My three year old daughter has just been diagnosed with Epilepsy. We did an MRI and a 48 hour EEG, both of which came back normal. She has had eleven gran-mal seizures, since March 2004. Ten out...

Created By: sgandhi104 | 2005-02-21 15:09 | 5 Comments

My daughter is 11 & she has Myoclonic seizure which we found out 3 weeks backl.She is on Depakote750 mg.I'm just concern should I keep using those medicine or worry about future side effects...

Created By: takrentz | 2005-02-14 08:41 | 3 Comments

Hi!  I am very new to all of this.  Our9 month old has had 4 seizures in the last 6 weeks lasting 15-30min (he is our first and only.)  Born 35wks but no major problems.  He has been diagnoist...

Created By: sgandhi104 | 2005-02-11 00:37 | 7 Comments

HI!My daughter is 11 yrs.old & she has been diagoned last week with Myoclonic & atonic seizure.She has PVL(periventricular Lukomalacia)that means white matter in brain is dead..Due to this...

Created By: Anonymous | 2005-02-09 21:03 | 21 Comments

I was shocked yesterday when I read about someone's personal experience with auras on epilepsy.com. What was so shocking is that I experinced the EXACT SAME THING! When I was a teen, I distinctly...

Created By: purplegirl | 2005-02-09 17:08 | 13 Comments

Does anyone else have a spouse with seizures?-My dh has Grand Mals probably 3 or 4 times a year-he will usually have 3 of them  or so in a 36 hour period and then is out of it for just about a...

Created By: hedgage | 2005-02-09 10:57 | 5 Comments

This is the first time I've posted on any seizure site so forgive me if I ramble. My son Gage will be 3 in March. He was about six weeks premature but no major complications at birth. Some...

Created By: aelisemc | 2005-02-09 01:21 | 32 Comments

HI MY NAME IS ANN AND I AM NEW TO THIS SITE.  I AM LOOKING FOR ANYONE WHO HAS A CHILD WITH PROGRESSIVE MYOCLONIC EPILEPSY OR ANYONE THAT KNOWS OF A GOOD SITE WHERE I CAN GET  INFORMATION ABOUT...

Created By: staceychil | 2005-02-08 21:52 | 0 Comments

What exactly are children with special needs. By Stacey ChillemiWhat exactly are children with special needs. They are kids who have or who have a high risk for a chronic physical, developmental...

Created By: gretchen | 2005-02-07 15:36 | 8 Comments

A few weeks ago I read just the beginning of a post from a wife who stated her husband had feelings of either shrinking or becoming very small.I was going to post on that thread but I can't find...

Created By: kalaim | 2005-02-07 15:06 | 8 Comments

Hello, I'm new to posting here.  My daughter started having absence seizures about a year and a half ago.  She has had two bigger seizures it seems while under stress during her first EEG (as she...

Created By: willsmom | 2005-02-07 11:56 | 40 Comments

My Son has been suffering from Migranes from the time he was born. He was a colic-y baby and threw up daily for 2 1/2 years. Finally we had an allergist explain to us that he suffered from food...

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