Community Forum

A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: deleena | 2005-03-21 07:55 | 7 Comments

Hi, My 10 year old son was at school last week, on playground and had a grand mal seizure. He never has had any illness or been sick in any way. However, my 13 year old son started in second grade...

Created By: dcurbeau | 2005-03-20 21:12 | 5 Comments

Hello,This is my first time posting.  In September my 3 year old daughter got up into my arms and had her first grand mal seizure.  Probably the scariest time of my life.  That night and the...

Created By: ashli | 2005-03-18 19:14 | 36 Comments

Hello.  My 4 yr old son has just been diagnosed (1 week ago) with complex partial epilepsy.  We initially thought he was having night terrors (began at 2 yr old).  He has only had 3 episodes in...

Created By: deleena | 2005-03-17 10:03 | 34 Comments

Hi, I posted a couple of weeks ago. Just when I thought things couldnt get worse. He has had a total of 3 tonic clonic seizures in 3 weeks. The bad thing is 2 of them have been at school....

Created By: manprasert | 2005-03-17 09:38 | 5 Comments

Hi! My fiance has been on epilepsy medication since he was nine years old and know is 28. We plan on having natural children in the future and we are aware that there is a chance he is sterile...

Created By: jant | 2005-03-17 08:54 | 2 Comments

Hello,My name is Tom, my neighbour- Eliza - suffers from epilepsy, and she asked me to send her list via internet. Maybe sombody knows how to help her (some organizations, fundations?). If you can...

Created By: staceychil | 2005-03-15 10:12 | 0 Comments
Created By: knorton105 | 2005-03-15 01:39 | 1 Comment

6 yrs ago my mom (61 yrs old now) was smelling odd odors (mostly Almonds) she had an episode at work where she was crying uncontrollably and her left arm, leg, etc. went very weak...  her family...

Created By: 2caret | 2005-03-14 20:41 | 24 Comments

HI all.. I am new here and looking for some info. My son had a tonic-clonic in May 2004. He actually had 3 in 1 week but we didnt know about them until the 3rd one. I saw it myself and it was the...

Created By: gretchen | 2005-03-14 17:58 | 0 Comments

I've had some problems with now some former family and friends and my relationships with them since I've gotten epilepsy. It bugs me a lot. I was reading a book and found this quote and it...

Created By: janb | 2005-03-14 14:49 | 19 Comments

i am the parent of an adult seizure person, i need to know how other parents delal with the different moods and the anger the person has, the always wanting to argue and fight my daughter gets to...

Created By: anujm | 2005-03-13 08:19 | 2 Comments

Hello, My family has a histlory of epilepsy and MR. My elder brother has both and so is the case with my father's elder brother's daughter. Also, my father's younger brother has the same. Are...

Created By: caballis | 2005-03-13 01:22 | 1 Comment

Hi my son is was on lamictal for seizures he had one big grand mal last april and 2 petit mal lately. he also takes adderall 5mg for adhd and at night for sleep he takes clonidine 0.1mg. Back in...

Created By: barb | 2005-03-08 20:07 | 0 Comments

I'm posting this in the hope that it will help someone else on the site.My husband and I waited to have a family mainly concerned about side affects from several of the AEDs that I've been on.  I'...

Created By: deleena | 2005-03-08 09:11 | 10 Comments

Hi, I posted a couple of weeks ago. Just when I thought things couldnt get worse. He has had a total of 3 tonic clonic seizures in 3 weeks. The bad thing is 2 of them have been at school....

Created By: shakeel | 2005-03-07 12:45 | 1 Comment

my daughter now 2 years old with infantile spasm diagonised with west syndrome . it started when she was just 3 months old , we noticed her getting convulsions after the vaccination at 3 months...

Created By: rhosgirl | 2005-03-07 01:01 | 15 Comments

I am a 20 yr old college student who is in the process of getting her license. But that's not the problem here. I'm 20 and i need to move out of my house soon before me and my mom kill each other...

Created By: benosmom | 2005-03-06 14:41 | 1 Comment

Hi, I have an 8 year old boy who had a tonic clonic seizure one and has since been diagnosed with seizure disorder. We think he has had a number of smaller seizures now and it taking Keppra. I'd...

Created By: akangie74 | 2005-03-05 06:32 | 24 Comments

Hello, I am new to this sight.  I came here trying to find some help.  I am a caretaker of a 16 year old girl who has lennox gastaut syndrome, is blind, and mentally retarded.  The problem is that...

Created By: calebtedwards | 2005-03-03 07:47 | 63 Comments

Every few months, my husband has something happen where it's like he feels pulses in his head that interupt his concentration. they only last about 2 seconds but can happen every minute or two....

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