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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: ted_jacqui | 2005-02-01 21:24 | 191 Views | 6 Comments

Hi,My husband and I have a 28 month old son (Rylan) who has been experiencing seizures since Nov 14, 2004.  He has 8-12 episodes in a 24 hour period where his eyes deviate up to 20+ times in a...

Created By: batman | 2005-02-01 19:43 | 44 Views | 0 Comments

reply received from epilepsy foundation...Quote: Our Communications Department has contacted CBS, and they should be adding information about the Foundation at the end of the broadcast tonight. We...

Created By: batman | 2005-02-01 10:55 | 51 Views | 0 Comments

Tonight's episode of “Judge Amy” [10PM ET/PT, 9 CT/MT] is titled "You Don't Know Me", with part of this show being where “Amy hears the case of a teenage epileptic girl whose...

Created By: vanderson | 2005-02-01 07:10 | 808 Views | 4 Comments

My son is 19 yrs. old and had his first seizure at 5.  He was well controlled until the age of 8 at which time he was put on phenobarbitol and developed a severe allergic reaction called Stevens-...

Created By: blondie1 | 2005-01-31 22:05 | 117 Views | 5 Comments

Hi there, my 9 year old daughter was just diagnosed with Generalized Epileptic Disorder after having one witnessed seizure at  home (absence that progressed to Tonic-Clonic).took her to the ER...

Created By: daizygirl | 2005-01-31 18:11 | 120 Views | 2 Comments

Hi, I am the mom of a 7 year old boy, who had his first seizure about 2 weeks ago. I had Epilepsy when I was young and it was about this age that I started. Not only that but my sister was having...

Created By: rhea1965 | 2005-01-28 03:40 | 5855 Views | 54 Comments

My 14 year old daughter was recently diagnosed with JME I was wondering if there was any one out therewho is about the same age she could converse with about this and to let her know she's not...

Created By: shiana2004 | 2005-01-26 07:34 | 339 Views | 17 Comments

will have another seizure. I am having a extremely hard time dealing with the aftermath of watching my daughter having seizures, and find myself constantly wondering when the next one will be....

Created By: amyj105 | 2005-01-26 02:53 | 444 Views | 13 Comments

My son austin ,3yrs,started having siezures about 2 months ago, and we have been through heck!!!! My whole family. Austin dosent see his dad anymore b/c of his drinking. austin was on topamax and...

Created By: angie | 2005-01-25 23:50 | 242 Views | 3 Comments

Hey, all.     My husband has been having these weird, severe headaches over the past two weeks. He finally went to the doctor (men!) and was diagnosed with Vascular Cluster Headaches. Has...

Created By: insaneskittle | 2005-01-25 01:25 | 137 Views | 7 Comments

Fourteen and taking topamax. I don't think my family excepts me anymore. It seems that they think I've changed form the person I used to be in to this sick, dumb, fat child that they don't wan't....

Created By: momof1 | 2005-01-23 10:41 | 958 Views | 19 Comments

Hi. I wonder if anyone can relate to how I'm feeling. 2 nights ago I had a bad seizure in my sleep. Almost all of my seizures are nocturnal. If I have them for a few nights straight I will...

Created By: sssmom | 2005-01-20 09:19 | 238 Views | 12 Comments

Hi Everyone,    I've only been here since Nov. '04 when my infant son was diagnosed with epilepsy.  I went through a grieving process where I really had to "let go" of so many of my assuptions and...

Created By: susie | 2005-01-19 23:35 | 191 Views | 5 Comments

Hi ! Im a mum of a 5yr old boy that has recently been diagnosed with early onset  Benign Occipital epilepsy.  Pannanyotious syndrome (or something like that) !I posted the following text but would...

Created By: raddog876 | 2005-01-19 02:02 | 353 Views | 12 Comments

I need some advice I'm currently seeing somebody that has epilepsy is this a problem that I have epilepsy also. If not I need some advice.

Created By: staceychil | 2005-01-18 16:06 | 159 Views | 4 Comments

Stacey ChillemiPh: 908.347.3580Fax:973.759.204622 Heather DriveManalapan, New Jersey 07726http://www.authorsden.com/staceydchillemiEmail...

Created By: rc6002 | 2005-01-17 21:18 | 166 Views | 6 Comments

Hello my son (16) had his first grand mal seizure in July.  He is currently switching from Tegratol to to Lamictal  He had a 2nd seizure over Christmas (combination - we think of sleep deprivation...

Created By: shea30 | 2005-01-16 17:53 | 1455 Views | 7 Comments

Hello, I'm new to this site. My daughter is 19 months old and started having temporal lobe seizures a couple of weeks ago. Her seizures have lasted 45 min to an hour before we've been able to...

Created By: shellyme33 | 2005-01-16 17:17 | 111 Views | 3 Comments

I am 33 years old with a history of febrile seizures. My seizures began shortly after my first vaccination, and ceased at the age of 3. I have never had a seizure since. My 9yr old son currently...

Created By: batman | 2005-01-14 19:22 | 82 Views | 1 Comment

In a few days I will be attending a patient education program for people with seizure disorders and their families. Feature topic: Treatment-Resistant Epilepsy.To Find out:* What treatment-...

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