Community Forum

A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: md32la | 2005-04-06 19:16 | 6 Comments

I am the sister of a 20 year old male with Lennox-Gastaut syndrome. I am looking for other adults with this syndrome and their familes. Please contact ...

Created By: kathy | 2005-04-06 10:29 | 0 Comments

Hi AllNew to this road here. We just joined your site.Posted once,heard from Gretchen (thank you again).It has been 3 months since Joseph has been on Depakote things are getting better,my heart is...

Created By: 2caret | 2005-04-06 07:32 | 5 Comments

HI... well, today was a hard day. My 14yo son's neuro called. He has been on Depakote ER for 10mo. (he had 3 T-C's in 1 week, all in his sleep, at 13yo, but the last one was witnessed and he lost...

Created By: babyz | 2005-04-06 02:13 | 9 Comments

I am in desperate need of help and/or advice. My 6 month old son has been having these "episodes" where he gets a blank stare, he stops breathing, and will not respond to anything. Afterwards,...

Created By: caribwoman40 | 2005-04-05 21:21 | 18 Comments

I have to do a paper for my Cognitive Psychology class and the topic I wanted to do was "The Effects Epilepsy Has On Memory".  My youngest sister has suffered from epilepsy since she was 6yrs old...

Created By: tomdarling | 2005-04-04 06:57 | 3 Comments

I am feeling at a low and a bit dispirited.At 2 1/2 my son started having myclonic and atonic seizures, with three days clear and one horrible day.  We started with depakote liquid, but after a...

Created By: l8dybug | 2005-04-04 00:02 | 1 Comment

My 5 year old son has had seizures since he was 18 months old. The first one lasted over an hour and he was in ICU for 4 days. It turned out he had a lung infection and had spiked a high fever...

Created By: g'smom | 2005-04-03 13:46 | 2 Comments

Help! My 2 yr old was born early with gastroschisis. 3 weeks later we were home after about 2 weeks she started arching back with her body straight and screaming the entire time. We had colic of...

Created By: carlsona | 2005-04-01 03:06 | 7 Comments

Aloha,My name is Amber and my younger brother (he's 3 years younger, 21) just had a grand mal seizure yesterday in Washington state. He doesn't have any insurance. Luckily the hospital he went...

Created By: oodaloopy | 2005-03-31 09:02 | 15 Comments

Ever since my son was old enough sit up and be spoon-fed he would occasionally have, what I know wonder is, a seizure.  I have never noticed him to have one out side of his highchair (until today...

Created By: ally | 2005-03-30 21:48 | 11 Comments

While talking to a "friend," he confided in me that he wanted to tell me something but didn't at the same time because everyone else whom he told just left him or ignored him; they got scared off...

Created By: rhosgirl | 2005-03-30 02:03 | 2 Comments

So I was feeling fine and then on Easter Sunday, I have a seizure. It's been almost 6 mths since my last one and I just thought this was just typical of me. I have a tendencey to have seizures on...

Created By: kaaye | 2005-03-29 14:33 | 4 Comments

Sorry this might end up being a double post (I was just trying to change the "folder" of my new post from Please need help to General...sorry if i mix this up..... I came here a few months ago bc...

Created By: kimmie34 | 2005-03-29 09:30 | 9 Comments

WELL I DONT KNOW WHERE TO START BUT HERE I GO I HAVE A SON THAT IS 12 NOW BUT AT AGE 3MONTHS PR SO WE STARTED HAVING SEZURES THAT SAID HE WAS APRATING ON MILK WE WAS SENT TO MEMPHIS SAID HE...

Created By: aeboyle | 2005-03-28 14:33 | 2 Comments

my boyfriend has just been amazing the past week since my seizure on monday. he stayed with me in the ER for five hours, he drove me to the neurologist the next day, he has gotten me anything i...

Created By: meningiomamommakelli | 2005-03-28 14:29 | 5 Comments

I have a question for my sister. Her son is almost 6 years old. He has been sleepwalking for nealy a year but it is getting worse. What I mean by worst is that he is now loosing control of his...

Created By: kathy | 2005-03-23 09:13 | 2 Comments

HiI have been reading the post from this cite for week now and have gotten alot of information. It has been great for our sense of well being,but as you all know our hearts still get in the way...

Created By: saffr0n | 2005-03-23 06:17 | 1 Comment

Enter   To all those wives...

Created By: pegasus332266 | 2005-03-22 11:40 | 17 Comments

How do you parents with kids with partial seizures cope with the medical system? My daughter who suffers from complex partial seizures had a seizure this morning at the school bus stop. The...

Created By: zacharysmom | 2005-03-21 14:55 | 1 Comment

My son was just diagnosed last week with IS after having the episodes for about 10 months. He has them upon awakening from sleep. They started him on Zonegran and it is killing his stomach. He isn...

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