A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: deleena | 2005-03-08 09:11 | 661 Views | 10 Comments

Hi, I posted a couple of weeks ago. Just when I thought things couldnt get worse. He has had a total of 3 tonic clonic seizures in 3 weeks. The bad thing is 2 of them have been at school....

Created By: shakeel | 2005-03-07 12:45 | 414 Views | 1 Comment

my daughter now 2 years old with infantile spasm diagonised with west syndrome . it started when she was just 3 months old , we noticed her getting convulsions after the vaccination at 3 months...

Created By: rhosgirl | 2005-03-07 01:01 | 655 Views | 15 Comments

I am a 20 yr old college student who is in the process of getting her license. But that's not the problem here. I'm 20 and i need to move out of my house soon before me and my mom kill each other...

Created By: benosmom | 2005-03-06 14:41 | 404 Views | 1 Comment

Hi, I have an 8 year old boy who had a tonic clonic seizure one and has since been diagnosed with seizure disorder. We think he has had a number of smaller seizures now and it taking Keppra. I'd...

Created By: akangie74 | 2005-03-05 06:32 | 2847 Views | 24 Comments

Hello, I am new to this sight.  I came here trying to find some help.  I am a caretaker of a 16 year old girl who has lennox gastaut syndrome, is blind, and mentally retarded.  The problem is that...

Created By: calebtedwards | 2005-03-03 07:47 | 15825 Views | 63 Comments

Every few months, my husband has something happen where it's like he feels pulses in his head that interupt his concentration. they only last about 2 seconds but can happen every minute or two....

Created By: angiew | 2005-02-28 14:24 | 214 Views | 0 Comments

My daughter is 10 mths old and neuro says she is having myloclonic jerks ? Emergency room drs said she is having seizures. Her MRI AND EEG were normal . So what do I do now? We see a Dr chugani at...

Created By: benosmom | 2005-02-28 11:56 | 287 Views | 2 Comments

Hi, I have an 8 year old son taking Keppra for seizure disorder. Last night he said he woke up during the night to get water and had a super heavy sensation in his legs. Does this mean he had a...

Created By: novembersea | 2005-02-28 11:47 | 304 Views | 4 Comments

I was reading a thread and someone mentioned seizure rescue. I have taken cpr many times, but never really heard of "seizure rescue". My son is 10, has had grand mal seizures in different...

Created By: jvalent | 2005-02-27 17:20 | 393 Views | 4 Comments

My 3yr old just had three seizure like episodes in one day that only physically effected her eyes and sense of awareness.  The first one happened when she was sitting on the floor.  She fell over...

Created By: ellgee | 2005-02-27 17:20 | 214 Views | 0 Comments

Most children at this age don't have "psychogenic seizures".  There may be some attention seeking or go manipulate a parent into "giving in".  Breath holding is a typical example, it's not...

Created By: wannabeagooddaughter | 2005-02-27 17:09 | 920 Views | 8 Comments

Hi. My mother has been having seizures daily for the past two years. She mostly gets them when she's stressed out, but I've seen her have them when lights flicker. Her doctor keeps telling her...

Created By: elaine280 | 2005-02-26 14:20 | 311 Views | 1 Comment

Hi, my son Scott who's 3 has just been diagnosed with Lennox Gastaut Syndrome. His seizures started off with smal jerks, nodding of the head, eyes rolling upwards and they grew in size until he...

Created By: ashli | 2005-02-26 09:10 | 339 Views | 2 Comments

Hello.  My son was diagnosed with complex partial seizures almost 2 weeks ago.  He rides tricycles at his preschool during playtime (his favorite thing to do).  I began bringing in his bike helmet...

Created By: samhasbeensaved | 2005-02-24 13:29 | 284 Views | 3 Comments

I AM NOT EXPECTING A HUGE AMOUNT OF ANSWERS OR RESPONSE, YET I FEEL THAT AFTER A YEAR OF PURE HELL THAT I SHOULD VOICE MY OPINION AND TRY TO COME TO TERMS WITH WHAT HAS HAPPENED TO MY LIITLE BOY...

Created By: jvalent | 2005-02-24 09:01 | 550 Views | 6 Comments

My 3yr old just had three seizure like episodes in one day that only physically effected her eyes and sense of awareness.  The first one happened when she was sitting on the floor.  She fell over...

Created By: deleena | 2005-02-22 07:57 | 209 Views | 1 Comment

BruceHi, Thanks so much for all the information. Wow, I have learned alot since I posted. There is alot of great information on this website. First of all, I realize now illness has nothing to do...

Created By: jvalent | 2005-02-22 00:14 | 155 Views | 0 Comments

My 3yr old just had three seizure like episodes in one day that only physically effected her eyes and sense of awareness.  The first one happened when she was sitting on the floor.  She fell over...

Created By: purple | 2005-02-21 23:19 | 217 Views | 0 Comments

My 13 yr old son has nighttime seizures also....everynight now for over 18months!!!!!  He's been on Topomax and now Keppra Klonopin and he is still having seizures.  He's had 2-24 hr EEG studies...

Created By: shiana2004 | 2005-02-21 23:19 | 4362 Views | 18 Comments

My three year old daughter has just been diagnosed with Epilepsy. We did an MRI and a 48 hour EEG, both of which came back normal. She has had eleven gran-mal seizures, since March 2004. Ten out...

Pages