A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: 2caret | 2005-03-14 20:41 | 24 Comments

HI all.. I am new here and looking for some info. My son had a tonic-clonic in May 2004. He actually had 3 in 1 week but we didnt know about them until the 3rd one. I saw it myself and it was the...

Created By: gretchen | 2005-03-14 17:58 | 0 Comments

I've had some problems with now some former family and friends and my relationships with them since I've gotten epilepsy. It bugs me a lot. I was reading a book and found this quote and it...

Created By: janb | 2005-03-14 14:49 | 19 Comments

i am the parent of an adult seizure person, i need to know how other parents delal with the different moods and the anger the person has, the always wanting to argue and fight my daughter gets to...

Created By: anujm | 2005-03-13 08:19 | 2 Comments

Hello, My family has a histlory of epilepsy and MR. My elder brother has both and so is the case with my father's elder brother's daughter. Also, my father's younger brother has the same. Are...

Created By: caballis | 2005-03-13 01:22 | 1 Comment

Hi my son is was on lamictal for seizures he had one big grand mal last april and 2 petit mal lately. he also takes adderall 5mg for adhd and at night for sleep he takes clonidine 0.1mg. Back in...

Created By: barb | 2005-03-08 20:07 | 0 Comments

I'm posting this in the hope that it will help someone else on the site.My husband and I waited to have a family mainly concerned about side affects from several of the AEDs that I've been on.  I'...

Created By: deleena | 2005-03-08 09:11 | 10 Comments

Hi, I posted a couple of weeks ago. Just when I thought things couldnt get worse. He has had a total of 3 tonic clonic seizures in 3 weeks. The bad thing is 2 of them have been at school....

Created By: shakeel | 2005-03-07 12:45 | 1 Comment

my daughter now 2 years old with infantile spasm diagonised with west syndrome . it started when she was just 3 months old , we noticed her getting convulsions after the vaccination at 3 months...

Created By: rhosgirl | 2005-03-07 01:01 | 15 Comments

I am a 20 yr old college student who is in the process of getting her license. But that's not the problem here. I'm 20 and i need to move out of my house soon before me and my mom kill each other...

Created By: benosmom | 2005-03-06 14:41 | 1 Comment

Hi, I have an 8 year old boy who had a tonic clonic seizure one and has since been diagnosed with seizure disorder. We think he has had a number of smaller seizures now and it taking Keppra. I'd...

Created By: akangie74 | 2005-03-05 06:32 | 24 Comments

Hello, I am new to this sight.  I came here trying to find some help.  I am a caretaker of a 16 year old girl who has lennox gastaut syndrome, is blind, and mentally retarded.  The problem is that...

Created By: calebtedwards | 2005-03-03 07:47 | 63 Comments

Every few months, my husband has something happen where it's like he feels pulses in his head that interupt his concentration. they only last about 2 seconds but can happen every minute or two....

Created By: angiew | 2005-02-28 14:24 | 0 Comments

My daughter is 10 mths old and neuro says she is having myloclonic jerks ? Emergency room drs said she is having seizures. Her MRI AND EEG were normal . So what do I do now? We see a Dr chugani at...

Created By: benosmom | 2005-02-28 11:56 | 2 Comments

Hi, I have an 8 year old son taking Keppra for seizure disorder. Last night he said he woke up during the night to get water and had a super heavy sensation in his legs. Does this mean he had a...

Created By: novembersea | 2005-02-28 11:47 | 4 Comments

I was reading a thread and someone mentioned seizure rescue. I have taken cpr many times, but never really heard of "seizure rescue". My son is 10, has had grand mal seizures in different...

Created By: jvalent | 2005-02-27 17:20 | 4 Comments

My 3yr old just had three seizure like episodes in one day that only physically effected her eyes and sense of awareness.  The first one happened when she was sitting on the floor.  She fell over...

Created By: ellgee | 2005-02-27 17:20 | 0 Comments

Most children at this age don't have "psychogenic seizures".  There may be some attention seeking or go manipulate a parent into "giving in".  Breath holding is a typical example, it's not...

Created By: wannabeagooddaughter | 2005-02-27 17:09 | 8 Comments

Hi. My mother has been having seizures daily for the past two years. She mostly gets them when she's stressed out, but I've seen her have them when lights flicker. Her doctor keeps telling her...

Created By: elaine280 | 2005-02-26 14:20 | 1 Comment

Hi, my son Scott who's 3 has just been diagnosed with Lennox Gastaut Syndrome. His seizures started off with smal jerks, nodding of the head, eyes rolling upwards and they grew in size until he...

Created By: ashli | 2005-02-26 09:10 | 2 Comments

Hello.  My son was diagnosed with complex partial seizures almost 2 weeks ago.  He rides tricycles at his preschool during playtime (his favorite thing to do).  I began bringing in his bike helmet...

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