Community Forum

A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: Emilily 2001 | 2017-09-17 21:12 | 2 Comments

My husband of three years (we have known each other for five years) has had epilepsy since he was born. Doctors were able to stop them when he was an infant but in 2009 he was in two bad car...

Created By: salsaljoon | 2017-08-18 02:24 | 1 Comment

Okay, this is an extremely long story and I'm new to this site, everyone here seems super nice and eager to help so here I go. Please read the whole story to get a better understanding :) I...

Created By: Mbrain | 2017-08-16 05:07 | 1 Comment

Hello,
My friend had his second epilepsy surgery and developped a bleeding at the resection site 5 days after surgery. He now has afasia...it is terrible. Does anyone has expirience with...

Created By: Kimberly7 | 2017-08-15 18:35 | 0 Comments

Good afternoon,

I am new to this website, but glad I found it. My husband started having seizures 4yrs ago and it has been a hassle to get him to want to take care of himself. It hasn'...

Created By: Skye Willoughby | 2017-08-12 17:57 | 2 Comments

Hi everyone i have a few questions that i have asked my doctor about but got no answer from so i thought i would come here i have had epilepsy since i was 7 years old and i now have daughter and...

Created By: SalmonSpawn | 2017-08-06 01:48 | 1 Comment

Hello everybody,

I am new to this site, and know very little about epilepsy and seizures. I am very new to this. I recently started a relationship with my girlfriend, who has epilepsy. I...

Created By: Evanhdc | 2017-08-04 22:12 | 0 Comments

Hi,
Anyone can suggest me some books about epilepsy?
Tks.

Created By: Froazer | 2017-07-24 08:00 | 2 Comments

Hello everyone, first of all i just wanna say that i'm so glad forums like these exist to help everyone that are experiencing these types of illnesses it makes me have faith in humanity. I...

Created By: casbug | 2017-07-14 11:22 | 2 Comments

Hey everyone.

I am in a new relationship with an amazing man who has had epilepsy since he was 13. He is now 39. We've only been dating several months and he just had his first...

Created By: Vyshaj | 2017-07-12 11:11 | 4 Comments

Hi All:
My husband got seizures 3 years back for the first time after 27 years (I was told he got once as kid). We were separated even before that due to other issues and was with him in...

Created By: Bob Bob | 2017-05-28 03:09 | 0 Comments

Hi, wondered if anyone experiences head shock, zaps or buzzes? Our son is having up to 50 a day. He is on epileptic medication which has reduced his night seizures we think.He used to have head...

Created By: tripletmom_5911b717b801f | 2017-05-09 08:41 | 1 Comment

My 16 year old son had several seizures when he was 6 - 8 years old. He discontinued medication when he was 11 years old. Five months ago he began having seizures. After videotaping and having...

Created By: WC2017 | 2017-05-08 13:20 | 1 Comment

Hello everyone. I am new to this site and community forum, however, I am not new to the world of Epilepsy. I do not have it, however, my boyfriend of nearly four years does. He is 37, and was...

Created By: NickiLynn31 | 2017-05-03 18:43 | 0 Comments

I have been with my husband for almost a decade and we have been married for almost 4 of those years. He was upfront with me when we started dating about it. Honestly I knew very little about...

Created By: i_still_have_hope | 2017-04-17 16:15 | 4 Comments

My boyfriend of 3 years, suffered from New Onset of Refractory Status Epilepticus in Nov 2016. He had to be put under induced coma for about a month to stop the seizures. Doctors did not think he...

Created By: Musicman_58e034ea2f66e | 2017-04-01 19:31 | 0 Comments

She hasn't had a seizure for quite some time, it's the effects of her medication which is bi polar medication and the side effects are terrible! Couple that with Korskoff syndrome and it...

Created By: Tinkr703 | 2017-03-28 14:25 | 2 Comments

I'm a female who is dating a man who has just told me that he's an epileptic. Initially it didn't bother me so much being that I'm a nurse and all, but after some thought, I...

Created By: zpznyc | 2017-03-24 16:55 | 4 Comments

HI,

One of my best friends is an Epileptic. He got his first diagnosis about 5 years ago and has had issues on and off ever since. His life is a real struggle and lately he has been getting...

Created By: Lonewanderer | 2017-03-06 03:50 | 0 Comments

I'm going to delve right into this.

My father has never taken care of himself. From age 12 to 38 not once did he brush his teeth. Causing teeth loss, constant head aches, and...

Created By: flicksh | 2017-02-25 16:07 | 1 Comment

My seven year old son began having unusal mood swings (going from happy to crying or happy to very angry), difficulties with attention and focus, getting sudden and severe headaches and vomitting...

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