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Spouse who needs support

Sun, 02/12/2012 - 19:05

Hi all,

My husband was (officially) diagnosed with complex partial seizures about 6 weeks ago. He's been having these seizures for several years, but it wasn't until late 2010 we realized there was a medical issue going on. Of course, it took several months to get a referral to a neurologist and another 10 months to actually get an appointment. During that time, his seizures increased in frequency and severity to the point where he ended up in the ER and finally saw an on-call neurologist who prescribed him lamotrigine. The first 4 weeks on the meds were a nightmare; his seizures were relentless without a single day of relief. Since then, he's had some seizure-free days, but it's still pretty up and down.

So these days he's like Dr. Jekyll and Mr. Hyde. When he's seizure-free, he's the regular, affectionate, smart, loving man I married. When he's had a seizure, he turns into this needy, selfish, neglectful jerk that I can't stand to be around and who can't remember anything the next morning. I never know which person it's going to be when I get up in the morning, and of course I still love him and I want to do anything I can to support him, but I think I'm at the end of my rope. Seizure disorder can be extremely difficult for family members too, and I need some extra support right now so I can continue to help my husband cope. I would be grateful for any advice or suggestions from other users on here, or even just a kind word. I know that we'll find some long-term solution in the end, but in the meantime, we're both worn out and anything that can ease the strain would be much appreciated.

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