Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Seeing someone with epilepsy

Wed, 01/19/2005 - 02:02
I need some advice I'm currently seeing somebody that has epilepsy is this a problem that I have epilepsy also. If not I need some advice.

Comments

RE: Seeing someone with epilepsy

Submitted by Gretchen on Sun, 2005-01-16 - 15:24
Ummmmm.......Can you give more information? Your worries? For instance what whipped through my mind is why do either of you have epilepsy - inherited? If you both have inherited epilepsy then potentially your children would have an increased chance of inheriting that but that's only me doing the math. (Dilantin Moment) I'm sorry can't remember the kind of doctor, but a specialized doctor that can give you percentile odds of what your children with this person could inherit if that's important to either of you could be sought. I have inherited epilepsy, there are quite a few of us in my family and we've found it actually a bonus for us. There is a lot of understanding, reduction of embarrassment, emotionally we support each other far more than others could. We're not married to each other though which is of course a different relationship. You know my opinion globally is that most situations are what you make of it - perceive it to be. That is also a rather "Pollyanna" type attitude I know. My husband doesn't have epilepsy, I sz frequently, I'm very photoconvulsive so going anywhere can be a real ambusher for me and frankly he becomes irritated because our plans are frequently smashed. But he has health problems also that sometimes crash our plans. I have no problem if we have to cancel plans if he's having problems but increasingly it irritates him when we have to change plans because we go somewhere I'm set up to sz by the environment. If one of you sz far more than the other would a competition or an attitude of "if you would just do as I do" occur? IOW - what are your specific concerns?

RE: RE: Seeing someone with epilepsy

Submitted by raddog876 on Sun, 2005-01-16 - 20:21

My Great Grandfather had epilepsy.  I'm not sure how the girl I'm seeing got it, she used to have grand mal seizures while I have Tonic Clonic Seizures.  The only thing I'm worried about is if we both have seizures at the same time which I know is almost impossible to do but it's just something I have in the back of my mind.  I really like her and I know that my concern is probably nothing to be concerned about because I know what to do if she has a seizure and she knows what to do if I have a seizure, I can usually just lay down and the seizure goes away.  I guess that's all that I'm worried about if she and I both have seizures at the same time.

My Great Grandfather had epilepsy.  I'm not sure how the girl I'm seeing got it, she used to have grand mal seizures while I have Tonic Clonic Seizures.  The only thing I'm worried about is if we both have seizures at the same time which I know is almost impossible to do but it's just something I have in the back of my mind.  I really like her and I know that my concern is probably nothing to be concerned about because I know what to do if she has a seizure and she knows what to do if I have a seizure, I can usually just lay down and the seizure goes away.  I guess that's all that I'm worried about if she and I both have seizures at the same time.

RE: RE: RE: Seeing someone with epilepsy

Submitted by Gretchen on Sun, 2005-01-16 - 20:42
Hello AgainWell I only would just say that probably at least one if not both of you have sz'd alone before? If so, and if you both sz'd at the same time? Wouldn't that be just about the same thing? No one would have a support person?I've been with more than one person and we're both sz'ing. I lived with 2 epileptics for awhile. Maybe this was just us but it seemed as if one of us would set the others off, for some odd reason, or we'd always sz at the same time. So we'd all be watching TV. At that time we all tended to have CPs, at the same time, recover and not know the other people had a sz, look around finally and ask "what did I miss on TV" at the same time. We all broke up! This doesn't happen with me and my son though. Let your individual feelings lead you. Problems can be worked out if there are any, as time goes by. I wish I knew you better, could talk to you privately and let you know more about my life. I think you would be reassured that this is true. And, again, it's how much can you handle or even want to? In bald honesty? I don't think my husband wants to handle my epilepsy any longer and I even more am sick of putting up with his intolerances. I have it! It seems harder on him! It's how we both perceive how life ought to be. He has some severe health problems too. He should be concentrating on his problems, and not mine so much. Now THAT is our issue. But all in all from what you're saying? I say let your feelings be your guides.GO FOR IT!Gretchen

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.