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Searching for answers and support
Wed, 10/07/2009 - 22:17Hello Everyone!
Here to learn more about epilepsy to help support my fiance who has seizures. We were never given an answer for why he has them. They believe that it is from a possible head injury during all of his years of football in his younger years and possibly college ball and it could just now be affecting him. His first one was at the age of 21 then had another one 6 months later. He was then put on medication. He didn't have another one for a least a year. So, he hadn't had a seizure since 2007 up until about one week ago. He went 2 and a half years without a seizure!! We have an appointment with his neurologist next week. Of course my fiance is super depressed because he lost his license for 6 months and really wants to know how he can become seizure free.
The doctor did up his dosage from 300mg to 600mg since last week. Hope this helps.
Thanks everyone, be looking for more of a history on my blog......
Re: Searching for answers and support
Submitted by bleedingheart on Wed, 2009-11-04 - 01:04
Hi
I can empathise having lived with epilepsy for most of my life. I lost my driver's licence for 5 years at one point because I wasn't able to get consistent seizure freedom with my previous medication.
Head injuries are one possible cause of epilepsy. I have generalised seizures which no one knows the cause.
I also gauge my response to certain situations. I do thought challenging. When a situation seems bad I try to think of how I will solve my difficulties. Is the situation really as bad as I make it out to be at first glance. It really isn't as bad as one thinks when they calm down. I also use breathing techniques to calm down. My current meds have given me seizure freedom for 18 out of the last 19 years. All of the techniques I described above were part of my cognitive behavioural lessons from a clinical psychologist. Exercise helps as long as it isn't too intense that it exhausts one into a seizure.
If your fiance does have a consistent number of years seizure free, you may want to look at reducing the dose of medication to the lowest therapeutic levels possible, to reduce side-effects. I was taking more than twice as much of my current medication 19 years ago as I am taking now. I believe that there is room for anyone to improve. Of course the ultimate goal should be seizure freedom with as few medications and as few side effectsas possible. Hope this helps.
Hi
I can empathise having lived with epilepsy for most of my life. I lost my driver's licence for 5 years at one point because I wasn't able to get consistent seizure freedom with my previous medication.
Head injuries are one possible cause of epilepsy. I have generalised seizures which no one knows the cause.
I also gauge my response to certain situations. I do thought challenging. When a situation seems bad I try to think of how I will solve my difficulties. Is the situation really as bad as I make it out to be at first glance. It really isn't as bad as one thinks when they calm down. I also use breathing techniques to calm down. My current meds have given me seizure freedom for 18 out of the last 19 years. All of the techniques I described above were part of my cognitive behavioural lessons from a clinical psychologist. Exercise helps as long as it isn't too intense that it exhausts one into a seizure.
If your fiance does have a consistent number of years seizure free, you may want to look at reducing the dose of medication to the lowest therapeutic levels possible, to reduce side-effects. I was taking more than twice as much of my current medication 19 years ago as I am taking now. I believe that there is room for anyone to improve. Of course the ultimate goal should be seizure freedom with as few medications and as few side effectsas possible. Hope this helps.