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Sat, 02/25/2017 - 16:07
My seven year old son began having unusal mood swings (going from happy to crying or happy to very angry), difficulties with attention and focus, getting sudden and severe headaches and vomitting from them then sleeping aftewards, telling us his legs would stop working for a minute, saying his ears turn off and then back on, and regression with reading, writing, and memory. He began telling me something was wrong with his brain. Thoughout the process of trying to figure out what was going on he had Strep 8 times over 9 months and a blood test showed that he previouly had MONO. We took him to a neurologist who ordered a MRI and EEG. MRI came back fine. EEG came back abnormal with generalized epileptiform discharges and bursts of diffuse spike and sharp waves. First neurologist we saw said epilepsy and wanted to start Keppra. When we went to discuss results another neurologist said wait on meds since he did not have any actual seizures (we have never seen a definite seizure and he did not have an actual seizure on the eeg). My son is still having these difficulties so he had a 24 hour eeg. This eeg showed the same thing. Current neuro doesn't know what to think. Says she has never medicated for seizures without seeing seizures but the spikes and discharges are concerning. epilepsy or not? meds or no? She said we could try Depakote for a month trial to see if it helps. I am looking for any advice. Do these behaviors and the abnormal eeg show signs of epilepsy? or something else?

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Hi there, speaking from

Submitted by Keara on Sun, 2017-03-05 - 03:07
Hi there, speaking from personal experience, mood swings have been something that I have experienced with having epilepsy. Also with not being able to focus I always had that problem as a kid and later found out they were "absence seizures." I would have them in the middle of doing an activity so I was prone to falling off things, stopping mid sentence, "zone out" in class etc. And before I actually got diagnosed I would have the sensations I have before seizures where I feel completely frozen for a few seconds. I would try and verbalize it but I never really properly explain it. Being on a medicine now has really helped me because I need it for seizure control and without it I would be having them. With meds there will always be side effects.... especially at the beginning so it is a risk, so it really is hard  to say! Afted being diagnosed and knowing I need meds for seizure control has been necessary for sure. If these symptoms are really making your sons life difficult, and the doctor thinks they are concerning, I would consider putting him on meds and seeing if these sensations stop for him. 

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