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Resources for parents who think I don't have epilepsy

Sat, 04/25/2015 - 14:19

I had a tonic clonic seizure back in January, on the 8th, I then had an EEG and MRI on the 9th of February. My neurologist was optomistic it was a 1 time thing on January 24th and my step mom took that to heart (my dad and step mom are known as the parents to my family).

On February 9th when I had my EEG, my doctor came to tell us I had an abnormal EEG, my dad was with me that day. A nurse went and got him from the waiting room and we both went in to the doctor's office (I can't think of the word suddenly of where the doctor comes into the room to see you, kind of like the waiting room but not really). I was worried then, as we were told I would probably just get a call that everything was normal.

My doctor told me I was having a lot of misfires during my EEG and apologized. She explained it like a spark, if it went to other parts of the brain it would "catch fire" and cause a seizure.

I had an EEG 10 years ago that had misfires back then, they wanted to do a 24 hour EEG, but my primary doctor, I guess, didn't think I was having seizures. I can't really remember as I was 12 at the time. They suspected I was having absence seizures at the time, which was the reason for the EEG.

I checked out all of the recent epilepsy books from libraries around me, I left one lying around and my parents found it and got upset. They said they were 100% certain I didn't have epilepsy as it would show up in the scans and to actually research things that effected like the misfires.

I called up my neurologist and asked, I do have epilepsy.

I'm trying to look for reliable information to show them I do have epilepsy. They aren't the kind of people you can argue with, I'm 21 years old and they still have a child lock on the TV. I'm afraid if I say my doctor said that they will say my doctor doesn't know what she's talking about as she's young, although she's been practicing for 6 years. I actually like my doctor, she's empathetic, I've never really had a doctor like that before.

Comments

On February 9th when I had my

Submitted by Anonymous on Sat, 2015-04-25 - 22:15
On February 9th when I had my EEG, my doctor came to tell us I had an abnormal EEG,  I had an EEG 10 years ago that had misfires back then, they wanted to do a 24 hour EEG   They suspected I was having absence seizures at the time, which was the reason for the EEG. A EEG is a test showing the electrical activity comming from the brain. It shows electrical activity which can't be seen on a CT scan or a MRI those show pictures of the brain or the brain itself. So the scan or MRI can show nothing but the electrical activity shows abnormalities . Your sparks (spikes or waves. You have had 2 different EEG's show abnormalities so the neurologist can diagnose you with epilepsy.  Or the seizzure you had along with the possiable absence seizures yo uhad is enough to give a diasnois. The sparks as you put them are abnormalities or electrical impulses going off wrong in the brain. If it hits just right then it can generalize which like the neurologist said will cause a seizure. Like the tonic clonic seizure you had. There are many people who still think of the stigma associated with epilepsy and it has been arround for well over a thousand years. I hope this helps and you get the assistance you need. Oh and you are old enough to get treatment on your own without your parents saying anything about it. Especially if you have a good relationship with the neurologist. Of and with todays medications your seizures can be controlled. Joe

On February 9th when I had my

Submitted by Anonymous on Sat, 2015-04-25 - 22:18
On February 9th when I had my EEG, my doctor came to tell us I had an abnormal EEG,  I had an EEG 10 years ago that had misfires back then, they wanted to do a 24 hour EEG   They suspected I was having absence seizures at the time, which was the reason for the EEG. A EEG is a test showing the electrical activity comming from the brain. It shows electrical activity which can't be seen on a CT scan or a MRI those show pictures of the brain or the brain itself. So the scan or MRI can show nothing but the electrical activity shows abnormalities . Your sparks (spikes or waves. You have had 2 different EEG's show abnormalities so the neurologist can diagnose you with epilepsy.  Or the seizzure you had along with the possiable absence seizures yo uhad is enough to give a diasnois. The sparks as you put them are abnormalities or electrical impulses going off wrong in the brain. If it hits just right then it can generalize which like the neurologist said will cause a seizure. Like the tonic clonic seizure you had. There are many people who still think of the stigma associated with epilepsy and it has been arround for well over a thousand years. I hope this helps and you get the assistance you need. Oh and you are old enough to get treatment on your own without your parents saying anything about it. Especially if you have a good relationship with the neurologist. Of and with todays medications your seizures can be controlled. Joe

Ok and as for parents all you

Submitted by Anonymous on Sat, 2015-04-25 - 22:18
Ok and as for parents all you have to do is give them the 24/7 help line where they can call and get their questions answered.That number is     Toll-Free Helpline: 1-800-332-1000 it is for you your friends parents or anybody wanting answers to questions Joe

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