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Need help figuring out my Brother's Seizures.

Thu, 03/26/2015 - 15:18

It startd through the past couple of months, my brother would have those moments where he'd be working, communicating or just normally going about his day, but all of the sudden he'd need a moment to regain his senses, he's aware of them, he'd try and lean towards something to support him, tries to concenrate to get pass it, with a certain movement in his throat ( neck ) as if he's trying to swallow, but nothing exccesive. 

I talked to him about it and he said he'd feel like having a very unpleasant Deja-vu, feels quite upset and uncomfortable for those few seconds, then goes back to normal again. i thought they were panic attacks or something due to his stressful work. he expected it to stop if he managed to get himself less stressed. 

then a last week he was sleeping in my room because we had people over sleeping in his, and ive woken up twice to the sound of him doing a certain swollowing movement excessively - which i'm familiar with it having nose allergies when sometimes we feel like scratching the inside of our throats-  while his hands shook, i freaked out and asked to stop cause it'd hurt his throat, i was sleepy so can't remember if he had responded immidately, but i think he did. 

i got a little concerned but got to sleep eventually, then the next day i woke up to find him standing in front of the bathroom door, his hands posed as if he's eating something, shaking, and he was doing that swallowing thing again and it looked more like chewing, with blood & saliva dripping out of his mouth, i ran to support him but he was standing still, kept calling his name, held his face, looked at him but he wouldn't respond, so i basically watched him having his first seizures until he responded, led him to my bed and asked him if he remembers what just happened, he couldnt, then he was confused and upset and got back to bed. slept for a few minutes and went to the toilet again, had a shower, got dressed and went to work. 

i was completely frightened and broke down but then looked up these symptoms and got to understand what this was, eversince this happened i spend hours day searching into it to understand it more, because i live in a little town in egypt where i can't entirely trust Doctors. from what i gather i feel like his earlier condition looks like absence sezirues which he can contain/control. 

this is when i started ear-dropping on his room and constantly check on him, then ive started witnessing the seizures he has while asleep, it has a certain pattern as far as i noticed, starts by a loud groan, then he waked up frightened, half sits up and says little prayers to comfort himself from being afraid, then he goes into a 30/40 seconds seizures where he's do that swallowing throat movement excsseievly again, hands shaking slightly, stares, looks pained. then either wakes up or goes back to sleep, depends on whether i decide to wake him up make sure he's alright or not want to ditrupt hes sleeping patterns since i'm aware it could make it worse. 

next day he shows me a bite on his tongue and wonders how he's got it, i looked at him suggesting it's possibely caused by these seizures, i tend to joke about it to lessen his stress about it, we tend to call it "The Glitch", it cracks him up. but he feels bad for me for not being able to sleep since it all started to happen, i tend to either have naps when he's not around, but can't keep doing so since i've work to take care of. 

now it's been days and i'm aware of two seizures he has daily while asleep, one of them starts a couple hours after he falls asleep, and the other is about a couple hours before he wakes up, groaning, wakes up terrified, has his seizure, sleeps again. 

but these are only the symptoms i've witnessed, i never saw what happened when he groans loudly, and i wonder if he has them while being awake, i wonder if he ever hurts himself being unaware, this is why i'm trying to keep an eye on him, but it's becoming highly dificult since it terrifies me, but i'm trying to contain my fears to be able to help him being diagnosed accurately. 

so as far as i know he seems to have Nocturnal Seizures at night and perhaps Absence Seizures which he can controle day time, i sinccerely hope they don't devolop into something more severe. 

we're seeing a neurologist next week for a brain scan, Drs here would only recommend an EEG but i'll try to push him to do an MRI, and EEG, perhaps an out patient EEG as well ( as one of the lovely helping people here have suggested ) 

now my questions are as follows: 

1- does he need me around when he has his seizures or should i start learning to fall asleep at night avoiding running to his room constantly to check on him? ( he's not aware of those and they don't bother him but i wonder if it could devolop into something that might hurt him ) 

2- ive read too many articles about people struggeling with apilepsy for a long time with limited chances to be cured, and they're not as much as those who have mentioned not having seizures using meds, so i need a light of hope that my brother could at some point be Seizures Free?

3- would should he be doing to try and prevent them from happening, as in daily habits or sleeping habits to be changed?

4- is there any type of food or drinks that he should quit? or actually any type of food that helps soothing him and making him less stressed and more able to sleep ( of course aside of meds )? 

5- is it wrong to speak to him or try to reach him when he's having a seizure? should i comfort him afterwards or let him not be aware it happened? if he's aware of having them would that increase the possibilty of him being able to control them?

6- is there a chance he's harm himself or anyone else while having them?

7- is it true that some of the meds would make him gain more weight? he's a tad over weight already 

8- would working out help him?

and any advices that could help me to be less frightened at night and be able to cope with his new condition. 

thank you very much in advance. 

cheers. 

Comments

Nocturnal Seizures at night

Submitted by Anonymous on Thu, 2015-03-26 - 20:47
Nocturnal Seizures at night Absence Seizures You have some good questions and some can be answered in this site. Start with epilepsy 101. go to the help section and research the types of seizures.2 depending on what you read and where they live and how they accept their epilepsy. It is true that people can get seizure free. It is also true that many that do also get off meds, There are many that stay on meds because they are what is keeping them seizure free.. You have a light of hope. He can be seizure free but a lot has to be done. Then there are people like me who have been living and dealing with epilepsy and seizures for a long time. I still have a seizure now and then, But they are nothing like they were when I was younger. The medications today are far better then the ones I took back in the 1960's. I can have one while talking to youo and you would know nothing about it. Instead of being minutes long and the postictal (time to get back to normal) 15-45 minutes long the same sezures are seconds long and seconds to get back to normal. Or like you posted moment to regain his senses.3 Read about triggers and yo uwill see some of the things that can cause seizures in some people. However each persons seizures are different in some ways and the same goes for triggers.4 triggers can answer some of those things. Stress and lack of sleep for some people. Oh and yes if he does have epilepsy and is put on meds a lot of neurologists will say NO ALCOHOL. I have had neurologists some say no and others have said a drink now and then won't hurt but to limit the drinks to 1 drink or a glass of wine or a beer. I have wine Ale or Beer here in case someone comes over. I might have a glass of wine every now and then but most of it is used in food I cook. I used to drink like a fish but then that was 30-40 years ago5 if he is having a seizure he might not know what you say or even hear you. However if he is having a focal seizure then by all means YES try and get his attention. I have a dear friend that will raise their voice to capture my attention. by doing that it brings me arround faster.  No it won't cause him to have more or less seizures. But it can get him out of some faster.6 Can he hurt himself or someone else while in a seuzure 7 Yes there are some meds that cause a person to gain weight. I have taken a few. However most people can and do lose that weight. I did.8 Working out can help anybody.You need to understand that your brother is just like everybody else. Which means he can do what others can. He will want to eat things he has been eating. Nothing changes except he now has seizures. Those seizures can be controlled and sometimes the person grown out of epilepsy. At other time there are people like me who has a seizure every 8-14 days which lasts a few seconds. As for not having seizures. I went 3 years without any taking meds but I also was working a job in which a trigger was that I didn't know about. Since then I have gone periods of time like months without a seizure.I can attribute the length of time in my seizures now to the newer medications that have come out. They are now being created to have fewer side effects and they do work better. I hope this helps and he gets teh assistance he needs Joe Oh and please relax and take care of yourself too. He may need your help and you may need his.Your joking with him together reminded me of what my brother would say about me in a seizure. He called the spaz attacks. Yes we did joke but that eased the concern and lightened up the questioning.

checking

Submitted by Anonymous on Thu, 2015-03-26 - 20:50
checking

The trigger saw getting too

Submitted by just_joe on Mon, 2015-04-06 - 11:43
The trigger saw getting too hot too fast. What I did was leave the job I loved. I was being trained to be a roving chef which would have covered 2 states. If a peroblem came up in a cafeterai I would have gone there andmake adjustments to the staff or procedures so the problem would't come up again. I would have also gon to work of special banquest which would have had thousands of people going to it to eat. Places like TI. Rockwell Int  Motorola Almost any large company in those 3 states. I loved cooking and still do. I had a cookbook on line and still have family and friends ask me what to do for this or that Or how to fix foods they bought but hane never fixed.As for triggers there is a list of them i the get help section. But triggers are like seizures each persons is different to them selves As for my drinking.. Well we used to close down the bars and clubs. But I can probably count the number of beers or bottle of wines I hvae drank on both hands. I have it on hand if someone comes over. But then I also have it to use in food. Beer bread or beer beans are good  I also have had a bar b que sause with it since the early 1970's. .The beer adds something to both beans and the bread because of the ingredents in it. Wine too. I use it with roasts and in the slow cooker. when you friends calls your name as you're having them, as it fastens it and makes it shorter, are you aware of it?  But it takes time to learn how to live and deal with epilepsy I hope this helps Joe

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