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need advice on emotionally supporting new bf post-seizure
Fri, 07/14/2017 - 11:22Topic: Family & Friends
Hey everyone.
I am in a new relationship with an amazing man who has had epilepsy since he was 13. He is now 39. We've only been dating several months and he just had his first seizure since we've been dating. We are not in the same state at the moment and so I am really struggling to figure out the best way to support him through this.
He is not in the hospital, but he is in rough shape, and recovery has been slow and painful for him. It's been about a week and a half. I realize that that is not that long in the grand scheme of things, but he has told me that sometimes he has had seizures and been fine to go into work the same day. So, this one seems to be pretty bad. He seems pretty depressed about the whole thing, and I just really don't know how to support him, especially from so far away. I know this is something I just can't possibly understand so I don't know what to say to him to make him feel better. So here I am reaching out to you guys.
What makes you feel better when you've had a seizure and are just sort of waiting to recover? Do you need space? Do you just want to rest? Or do you appreciate hearing things about how your family and partners are there if you need them. Do you like being checked on emotionally? I mean, I know everyone is different and needs different things but I am just kind of really struggling here. I want to be there for him, and let him lean on me. But we are still so new and I just sort of feel like I'm shooting in the dark on how to be there for him and I definitely don't want to bring this up to him right now, as he is struggling, for obvious reasons. This is about him. Not me.
So just looking for advice. Anything helps.
Thanks.
Comments
Thanks for writing in and
Submitted by epihelp on Mon, 2017-07-24 - 09:40
Thanks for writing in and supporting your friend. Everyone goes thru stages a bit differently and there are no right or wrong answers. Being there and offering support, letting the person with seizures know you are there for them while not making them feel a burden is so helpful.If a person has a seizure that is different than usual, or they are taking longer to recover than usual, it's helpful to encourage them to see their health care provider. There may be something else going on that needs treatment. Have someone check on them if you are not able to do so yourself. Here are a few links that may help. http://www.epilepsy.com/get-help/managing-your-epilepsyhttp://www.epilepsy.com/get-help/seizure-first-aidhttp://www.epilepsy.com/get-help/managing-your-epilepsy/living-epilepsyThanks for joining the Epilepsy Foundation!
May I suggest talking to your
Submitted by whatitisepilepsy on Tue, 2017-07-18 - 17:38
May I suggest talking to your doctor about a med called LaMICtal, If that dose not work, I went a whole year without arua or seizures taking a martial arts class. It was not so much what I learned, the over 100 jumping jack, stretching, working my body at least 5 days a week. You have heard it before," use it or lose it". Exercise make sense. As soon as I stopped everything came back with in a week. Good luck, life with out seizures can be amazing, always try new things don't let it win.