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My First Seizure...I'm Scared To Death!
Fri, 11/26/2010 - 19:18Comments
Re: My First Seizure...I'm Scared To Death!
Submitted by Ghebre on Wed, 2010-12-01 - 01:05
Char,
YES, Knowning nothing much about Epilepsy, your first time seizures are going to make you feel upset, angry, confused & helpless.
And many times, having hard time accepting this fate, you are going to be in denial.
Let me assure you, many of us have been in your shoes, before we learned how to ACCEPT, LEARN TO LIVE & COPE with this menace.
Therefore, YES, having first time seizures, YOU WILL BE SCARED, IN PANIC & ANGRY.
EVENTIALLY, YOU WILL LEARN TO LIVE WITH IT, just like milllions of us.
I hope, you come to understand, YOU ARE NOT ALONE!!
Stay strong,,,
Char,
YES, Knowning nothing much about Epilepsy, your first time seizures are going to make you feel upset, angry, confused & helpless.
And many times, having hard time accepting this fate, you are going to be in denial.
Let me assure you, many of us have been in your shoes, before we learned how to ACCEPT, LEARN TO LIVE & COPE with this menace.
Therefore, YES, having first time seizures, YOU WILL BE SCARED, IN PANIC & ANGRY.
EVENTIALLY, YOU WILL LEARN TO LIVE WITH IT, just like milllions of us.
I hope, you come to understand, YOU ARE NOT ALONE!!
Stay strong,,,
Re: My First Seizure...I'm Scared To Death!
Submitted by phylisfjohnson on Wed, 2010-12-01 - 10:50
Stress and med interactions are among the top seizure triggers.
As for diagnostic testing, an EEG is not the end all and be all of testing. I know a guy who had 5 EEGs before he was properly diagnosed with Video EEG Monitoring. Let me explain:
EEG (Electroencephalogram) – is a non-invasive test which detects and records electrical impulses on the surface of your brain. These impulses are transmitted from small metal discs, placed on your scalp, through wires which are connected to an electroencephalograph. This instrument is used to register the activity and record it on graph paper or on a computer screen. It is a safe and painless procedure which will not affect you in any way. An EEG is used by a neurologist to determine whether there are any irregular electrical activities occurring in the brain which may produce seizures. It can help identify the location, severity, and type of seizure disorder. An abnormal EEG does not diagnose epilepsy nor does a normal EEG reading exclude it.
On the other hand...
Video EEG Monitoring – allows prolonged simultaneous recording of your behavior and the EEG. Seeing EEG and video data at the same time, permits precise correlation between seizure activity in the brain and your behavior during seizures. Video-EEG can be vital in the diagnosis of epilepsy and epileptic seizures. It allows the doctor to determine: whether events with unusual features are epileptic seizures…the type of epileptic seizure, and…the region of the brain from which the seizures arise.
Anyway, try not to be frightened until you know exactly what you're facing. I've had epilepsy for 40+ years and, believe me, there are many meds that can help control your seizure activity.
Hang in there and let us know your results. We're here to help you in any way we can. Also, there's a wealth of information in the drop-down orange bars to the left. If you want some education, start with "Epilepsy & Seizures."
Good luck... Phylis Feiner Johnson www.epilepsytalk.com
Stress and med interactions are among the top seizure triggers.
As for diagnostic testing, an EEG is not the end all and be all of testing. I know a guy who had 5 EEGs before he was properly diagnosed with Video EEG Monitoring. Let me explain:
EEG (Electroencephalogram) – is a non-invasive test which detects and records electrical impulses on the surface of your brain. These impulses are transmitted from small metal discs, placed on your scalp, through wires which are connected to an electroencephalograph. This instrument is used to register the activity and record it on graph paper or on a computer screen. It is a safe and painless procedure which will not affect you in any way. An EEG is used by a neurologist to determine whether there are any irregular electrical activities occurring in the brain which may produce seizures. It can help identify the location, severity, and type of seizure disorder. An abnormal EEG does not diagnose epilepsy nor does a normal EEG reading exclude it.
On the other hand...
Video EEG Monitoring – allows prolonged simultaneous recording of your behavior and the EEG. Seeing EEG and video data at the same time, permits precise correlation between seizure activity in the brain and your behavior during seizures. Video-EEG can be vital in the diagnosis of epilepsy and epileptic seizures. It allows the doctor to determine: whether events with unusual features are epileptic seizures…the type of epileptic seizure, and…the region of the brain from which the seizures arise.
Anyway, try not to be frightened until you know exactly what you're facing. I've had epilepsy for 40+ years and, believe me, there are many meds that can help control your seizure activity.
Hang in there and let us know your results. We're here to help you in any way we can. Also, there's a wealth of information in the drop-down orange bars to the left. If you want some education, start with "Epilepsy & Seizures."
Good luck... Phylis Feiner Johnson www.epilepsytalk.com
Re: My First Seizure...I'm Scared To Death!
Submitted by amy71 on Fri, 2010-11-26 - 20:49
I feel bad for you. :( I can see u being scared to death, it can be the scariest thing even when u do know what to expect. I've only had a couple of grand mal seizures, mine are mainly petit mal. There are soooooo many minor things that can cause them, I wouldn't start to panic. It could very well like you said be the 2 meds you are taking. Wait to see what the Drs say and take it from there. Best of luck... ;)