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My childs story

Sat, 06/27/2009 - 14:32

My 9 year old son has generalized epilespy, Juvenile Myoclonic Epilespy.  He has tried 7 different med but has has side effects with them all.  He is now on 3 different meds daily ans still has 3-7 seizures daily. His seizures are Absence, Myoclonic, Tonic Clonic, Clusters and Status. However it is better the the 20-30 seizures he was having daily without the meds.  He is not a candidate for the surgery. So we just take things one day at a time with his seizures.  I am  hoping that their will soon be one medicine that will take care of all of his seizures.  My oldest son was diagnosed with sever teen OCD a few months ago  so you can imagine how full my day is between the two of them.  I have taken all of my knowledge about Dylan Epilepsy and turned it into an educational childrens book about epilepsy.  I put into the book everything that I was looking for in a book when Dylan was first diagonsed. The book talks about school, 911, ambulance, hospital, tests, meds, side effects and everyones feelings. The book has done well and has been approved by the National Epilespy FOundation. They evem sell the book on their online book store web site at www.efa.org Click on the store tab and put in the title Through His Eyes and the authors name Lisa Loiodice. Half the money of the sells goes to the Epilepsy Foundation and the other half goes to the makings of my 2nd book that will be started the end of the summer. I ask that you all help and support this book. Every book sold is money to the Foundations and spreading the word on Epilespy.  Please let everyone know about the book and lets help as many people as we can learn more about epilespy.  Ny2ga67@aol.com

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