Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

My Child died from Epilepsy

Sun, 08/28/2011 - 19:41

My child died from Epilepsy. The Medical Examiner said he was shocked to see how many people die of Epilepsy, yet he feels that most doctors, patients, parents do NOT take it as a life ending threat. My pain is real. I wanted to share and to warn. My child was 23 yrs old and was not taking his illness seriously. He kept going on and off medicantions. (He said, the side effects were worst then the seizures.) Unfortunately, he suffered from Clonic Tonic seizure that took place primarily in his sleep. He would be in COMPLETE denial sometimes that he even suffered a seizure until someone would point out the blood on his sheets from biting through his tongue AGAIN or all his unexplained bruises! I am so sad and angry!


I wanted to share Poem I wrote about Jimmy. Jimmy died at the age of 23 while away at college. He was alone when he suffered from and died of a Status~Epileptus seizure! He attended the University of Central Florida and he was so proud to be a UCF Golden Knight!

          Jimmy ~ Pat
                                 By Dawn Saul
My sweet boy you had to go.
The reasons are for God to know.
Laugh and play in celestial skies.
No more worries, no more lies.
I know you tried to be so strong.
Hiding your struggles for so long.
Released from burdens of this life.
Now renewed in the afterlife.
Without the pain and the dread.
Your angel wings are fully spread.
Time to soar in ecstasy. 
Send some Angels to comfort me.
Whisper a prayer in God's right ear.
Ask him to help your Mother dear.
Tell him Mommy cries each night.
For my eternal Golden Knight.
It helps to know you're up above.
Sending blessings and your love.
Finally, FOREVER seizure free.
In Heaven's sky, please wait for me!

A poem written in honor of my son, James Patrick 'Jimmy' Saul who died of an Epileptic Seizure July 2009.  Please follow the link to the web BLOG I created in my child's honor.

http://dawnsaul.blogspot.com/

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.