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Infantile Spasms....HELP!

Mon, 03/21/2005 - 14:55
My son was just diagnosed last week with IS after having the episodes for about 10 months. He has them upon awakening from sleep. They started him on Zonegran and it is killing his stomach. He isn't sleeping, refuses to eat so he's wearing an NG tube in his nose to keep hydrated. He is 19 months old. I called the dr several times who things that maybe its just reflux. I upped the reflux meds and it isn't helping. He is in alot of pain. He is ventilator dependant and screaming so hard with stomach cramps that I can hear sound! They finally said to take him to the ped tomorrow to be evaluated to make sure it is nothing else going on before they will switch meds. Its like they dont believe that the Zonegran is causing him to be like this. Anyone have any good results with Klonopin? How about stomach cramps with Zonegran?

Comments

RE: Infantile Spasms....HELP!

Submitted by batman on Mon, 2005-03-21 - 14:55

ZacharysMom,

There is a starting page for info about Zonegran, at www.epilepsy.com/medications/b_zonegran_intro.html

Then you can go through many other separate pages just as well. Here's a few in particular which you may want to look over.

What are the common side effects of Zonegran? = www.epilepsy.com/medications/b_zonegran_side.html

What are the serious side effects of Zonegran? = www.epilepsy.com/medications/b_zonegran_serious.html

What are the effects of Zonegran on children? = www.epilepsy.com/medications/b_zonegran_children.html

I don't know about good results for Klonopin.

Hang on strong.

Bruce J

ZacharysMom,

There is a starting page for info about Zonegran, at www.epilepsy.com/medications/b_zonegran_intro.html

Then you can go through many other separate pages just as well. Here's a few in particular which you may want to look over.

What are the common side effects of Zonegran? = www.epilepsy.com/medications/b_zonegran_side.html

What are the serious side effects of Zonegran? = www.epilepsy.com/medications/b_zonegran_serious.html

What are the effects of Zonegran on children? = www.epilepsy.com/medications/b_zonegran_children.html

I don't know about good results for Klonopin.

Hang on strong.

Bruce J

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