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Help
Sun, 02/24/2013 - 15:47Topic: Family & Friends
My wife has had eplepsy for the last 6 or 7 years. And I am still having problems coping with this. I watch over her a like a hawk. I am to afraid that she will have an attack and will need me. She only has these attacks every 28 to 35 days apart. The doctors can not seen to find out what is causing this and she can not tolerate most of the meds. We have been to Loyola Hospital, Northwestern Hospital, Mayo and she is now at the University of Chicago Hospital. I just don't know what to do !! It is taking a toll on our married life. Are their any groups in Chicago or Chicago Area for husband to go to for support ?
toesheman
Comments
Don't be like a hawk. You're
Submitted by gek on Mon, 2020-02-17 - 07:40
Don't be like a hawk. You're scared, I understand that, but been treated differently, over watched, and so on is the thing that I hate the most. I've a seazure? I know I can get hurt, but I want my liberty. it must be scary as hell for the people who witness a seazure, but we are still the same, with moodswings, tired and so forth. I hope you'll be able to cope with all that, and if she lashes out... don't take it personally! We're just fed up with everything. Meds, doctors,... (it took me almost 20 years to accept that I've epilepsy, and I still heavenkt really cope or accept it, and I often lash out against someone that doesn't even deserved it.) I really hope you'll get through all this, it's not easy for shure.
Re: Help
Submitted by epilepticwife on Wed, 2013-02-27 - 10:57
Know you aren't alone in having a hard time with your spouse and epilepsy. It does take a toll sometimes on married life. Remember that your wife is still the same person you married. Medicines and illness will change her mood and health- and it will take time to find a treatment that is working. Your worry and frustration is normal. Try to find friends and a support group in the area that can help. it can be good for you to get that support face-to-face with other spouses of epileptics. There is a man in my church whose wife is epileptic and we share experiences and trials that others don't understand. Somehow having another man who "gets" me there is important. Best of luck.