Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Hello, I need some advice regarding my child who has epilepsy
Thu, 02/03/2005 - 21:03Topic: Family & Friends
Hello, I'm 23 years old, a single mom and I have a 3 year old who was diagnosed with epilepsy at the age of 4 months. For the past 2 weeks I have had the most awful trouble with her in regard to her sleep patterns. She is fighting both me and her daycare provider tooth and nail about going to sleep although you can see she is exhausted. I've also noticed (and it may be coincidental) that she has seizures more often when she is over-tired. Can ANYONE offer me some advice? Thanks in Advance.
Comments
RE: RE: Hello, I need some advice regarding my child who has epi
Submitted by KHardin on Wed, 2005-02-02 - 15:10
Thank you so much for responding to my cry for help Amy! My name is Kelena and my daughters name is Ondai. She is currently taking phenobarbital and trileptal. She was doing well for a while when we first introduced the trileptal but now the sleeplessness has returned. I will ask her neurologist about the b6. Thanks so much again. If i have any other concerns i will probably ask you about them!
RE: RE: RE: Hello, I need some advice regarding my child who has
Submitted by AmyQ on Thu, 2005-02-03 - 10:53
Kelena,I read your initial entry. Children tend to have more seizures when they are tired (or sick). Also - sleep is often a problem for children with seizure disorders. Have they done a sleep eeg to see if your little one is having seizures while she sleeps? That's what we found was happening with our son (he is now 3). Now that he has the proper medication, he usually sleeps through the night.We have also used vitamin B6. The jury is still out on the results. You should try it. However, too much B6 can be harmful and cause nerve damage. Ask your physician. But - for an infant like yours, 1/2 tablet (crushed) and disolved into a bottle once a day is probably what he/she will tell you to try (you can get B6 vitamins over the counter at the drug store). Keep us posted,AmyQ
RE: Hello, I need some advice regarding my child who has epileps
Submitted by amycleveland on Tue, 2005-02-01 - 15:19
Hello, My name is Amy I have a 2 1/2 yr old boy Jack,with complex partial epilepsy. What types of meds is she on. Our neurologist said B6 would help my son and it has. His meds caused sleeplessness and when they sleep you It's because there brain needs it and seizures are exhausting for a little Email me If you wHave any questions I have answers or can find them fast.Good Luck,Amyamyl.cleveland@sbcglobal.net