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Family Impact
Mon, 03/02/2009 - 22:47Comments
Re: Family Impact
Submitted by Amazon on Fri, 2009-03-27 - 04:27
Re: Family Impact
Submitted by rachels_mom on Wed, 2009-03-04 - 12:21
Hi!
I'm so sorry about the increase in seizures lately! As the parent of a teen with epilepsy, what you're describing is one of things that concerns me about Rachel being independent in just a few years.
I know it's going to be hard to make that break with her, and the worry will always be there. If you know that you are taking your meds the way you should, and making sure you get enough sleep, etc. then I would say a trip to the neuro is definitely in order.
I agree that you should try and make appts. around the other responsibilities in your life, but I also think that managing your epilepsy should be a top priority. The sooner you can regain control, the better your quality of life, and the less your Mom has to worry (and nag) about.:)
Kelly-Mom to 14 year old artist, and Invader Zim fangrrl, Rachel. Rachel has partial seizures, with sec. generalization. She takes Keppra and Trileptal, has a VNS, and is on the LGIT.
Hi!
I'm so sorry about the increase in seizures lately! As the parent of a teen with epilepsy, what you're describing is one of things that concerns me about Rachel being independent in just a few years.
I know it's going to be hard to make that break with her, and the worry will always be there. If you know that you are taking your meds the way you should, and making sure you get enough sleep, etc. then I would say a trip to the neuro is definitely in order.
I agree that you should try and make appts. around the other responsibilities in your life, but I also think that managing your epilepsy should be a top priority. The sooner you can regain control, the better your quality of life, and the less your Mom has to worry (and nag) about.:)
Kelly-Mom to 14 year old artist, and Invader Zim fangrrl, Rachel. Rachel has partial seizures, with sec. generalization. She takes Keppra and Trileptal, has a VNS, and is on the LGIT.
Re: Family Impact
Submitted by rikk on Mon, 2009-03-02 - 23:25
hi anna, parents point of view, and patient point of view. I hope that will be of help. parents wants complete control. (they say that is not the case) It is. They want you to be safe. You want to have your life your way. understandable. the solution is in the details. maybe the doctor appointments would not be a bad idea, if it is worked around your work schedule. it may mean changing medications. That would give some for your mom. What you get is giving respect and validating the worry, but at the same time insisting on your independence. you can also give them some comfort that you will call them if you have a problem. That is the polite way. You are still allowed to have your own life. That said make smart decisions. From the way you write i would say that you have the ability to do so. I have to deal with a similar problem. Only it is my wife that wants complete control. compromise on somethings. my life, my way. my decision, my responsibility.
hope it helps. rikk
hi anna, parents point of view, and patient point of view. I hope that will be of help. parents wants complete control. (they say that is not the case) It is. They want you to be safe. You want to have your life your way. understandable. the solution is in the details. maybe the doctor appointments would not be a bad idea, if it is worked around your work schedule. it may mean changing medications. That would give some for your mom. What you get is giving respect and validating the worry, but at the same time insisting on your independence. you can also give them some comfort that you will call them if you have a problem. That is the polite way. You are still allowed to have your own life. That said make smart decisions. From the way you write i would say that you have the ability to do so. I have to deal with a similar problem. Only it is my wife that wants complete control. compromise on somethings. my life, my way. my decision, my responsibility.
hope it helps. rikk