Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

epilepsy stigma

Thu, 10/30/2014 - 10:22

I have two friends who have epilepsy but do not want to tell anyone about it, which just proves that there still is stigma surrounding it... I do not have epilepsy but I don't understand why some people choose to keep it a "secret"... Wondering if anyone else here is also afraid to tell people about their condition and why you think there is a stigma associated with it? 

Comments

There is a stigma and it has

Submitted by just_joe on Fri, 2014-10-31 - 10:30
There is a stigma and it has been around for 2000+ years. Most people only know about 1-2 kinds of seizures. Those 2 are grande mal epilepsy and Petite mal epilepsy. Those 2 tpyes of seizures are the worst and the slightest seizures. So most people even many people who have epilepsy do not know that there are 40+ different types of seizures.You might get more information by calling the 24/7 line. They can answer questions. If you think you can't or the people won't answer your questions you are wrong. The line is for anybody to use.

As soon as you tell you are

Submitted by gek on Mon, 2020-02-17 - 07:06
As soon as you tell you are treated differently by everyone, family and friends included. It's easier to just keep it to yourself and put a fake face in front of everyone. For centuries we where considered witches, people that had to go to the stake, sorry, but people still think that. Whitnessing a seazure must be scary so... The isolation hurts, but hearing "you are weird, poor kid" and so forth, hurts much more!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.