Been reading again WOW

Hi All

New to this road here. We just joined your site.Posted once,heard from Gretchen (thank you again).It has been 3 months since Joseph has been on Depakote things are getting better,my heart is healing a little and breathing is getting easier. But I just wanted to say I have been reading the post again and wow amazing stories and people here. I get a day off a week from Joseph, my mom has taken him since he was 3 months old and it is very nice so that when I come on and just read every thing I can find. Helps alot in a very big world feeling alone with my own problems and Joseph.Makes my pity party seem trivial and that is a good thing. I hate it when someone tells you to look around and there is always someone  worse off tahtn you. Well no there isnt because when it happens in your house someone elses problem doesnt cncern you.I dont mean that in a spitful way, just true for me. But reading and getting information does a heart good. I read for about 3 hours and by the time I cant sit here any more I go away with a feeling of hope,caring,and lots of smiles, and a little heavy hearted.

We are still looking into Pharmogenetic in Ohio,but have slowed down a little to wait and see how the med Joseph is on is really going affect him,no seizures is the number one goal and he hasnt had any since he started only Febrile 2,but those are nothing compared to the clonic tonic he was having, and of course I still lay awake at night seeing those,my faith was deffinalty shaking over that.but the med seems to have givin him somthing he was lacking as far as his commuication,imagination,and feeling go, he is doing things he wasnt doing before the med so maybe it has made somthing connect that wasnt connected before,I get huggs kisses and none stopped conversation all day long and that wasnt there befoe the med.I dont like them but I dont take them he does so what I like is not important (hard lesson learned).We go in may for level checks again, his badddddd boy is slowing down alot I can finally again talk him out of a very bad boy behavoir,the only thing that really scares me is      He isnt eating, about i hour after he takes his med (250 mg 2 x day) he get very weak, his eyes will roll into his head and he stumbles and then he will eat, after he eats he is very energetic and gets laughing so hard he cant stand up for a long time, he can laugh for half hour or more and its uncontrollable laughter.  Well I have went on long enough, again I just want to say THANKS.for all the stories,smiles, tears, and just being.

Kathy

momma to Joseph 6 r22 mosaic and Dondi 30