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8 year old with rolandic epilepsy
Sun, 12/05/2004 - 20:26Hi,
My son was diagnosed in spring 2003 after several mild seizures. He has been on carbitrol since then -150 mg 2xday. Yesterday his neurologist increased the dose to 200mg 2xday. He has been having difficulties in school with distractibility and handwriting. The distraction issue started about the time his meds started, and increased when his dosage increased. We are in the process of working out with Drs. meds for add/adhd. Has anyone had similar distraction problems while on carbitrol/tegretol? And, how about handwriting?
Thanks, robin510
Comments
RE: RE: 8 year old with rolandic epilepsy
Submitted by antcon on Fri, 2004-11-19 - 13:04
Hi
My 9 year old son was diagnoised in July 03 with BRE. Since his seizures were mild and did not happen often, we decided not to place him on any medicine.
He has had under 10 since this was dig. I know how scary it is. Let me suggest if your son is not on med to place a baby monitor in his room so you can hear him if he needs help.
That is what works for us. If you would like to know more, email me
Hi
My 9 year old son was diagnoised in July 03 with BRE. Since his seizures were mild and did not happen often, we decided not to place him on any medicine.
He has had under 10 since this was dig. I know how scary it is. Let me suggest if your son is not on med to place a baby monitor in his room so you can hear him if he needs help.
That is what works for us. If you would like to know more, email me
RE: RE: RE: 8 year old with rolandic epilepsy
Submitted by goodmomma on Sat, 2004-11-20 - 23:28
Hello!
thank you for taking the time to respond to my post.
We purchased a baby monitor and put it in my sons room. I find comfort in being able to hear him thru out the night.
We are taking my son back to the Childrens Hospital for his appt with the Neurologist.
My question i have is........... i only know of the one seizure my son had........ and yes, he had the EEG done, and yes it came back abnormal......... but, i thought they only gave the term "epilepsy" diagnosis if you have had MORE than one seizure? The pediatrician made a comment that since he has BRE benign rolandic epilepsy) which occurs mostly at night, that we may not have even been aware that he was having seizures. So, i guess my question is, how can the neurologist call it epilepsy????
We are continuing to keep a close eye on our son............. and of course, saying prayers that he has no more seizures.
Would love to chat with anyone whose child has been diagnosed with BRE........... i am feeling really alone in all of this.
Thanks!
signed, a worried mommy!
Hello!
thank you for taking the time to respond to my post.
We purchased a baby monitor and put it in my sons room. I find comfort in being able to hear him thru out the night.
We are taking my son back to the Childrens Hospital for his appt with the Neurologist.
My question i have is........... i only know of the one seizure my son had........ and yes, he had the EEG done, and yes it came back abnormal......... but, i thought they only gave the term "epilepsy" diagnosis if you have had MORE than one seizure? The pediatrician made a comment that since he has BRE benign rolandic epilepsy) which occurs mostly at night, that we may not have even been aware that he was having seizures. So, i guess my question is, how can the neurologist call it epilepsy????
We are continuing to keep a close eye on our son............. and of course, saying prayers that he has no more seizures.
Would love to chat with anyone whose child has been diagnosed with BRE........... i am feeling really alone in all of this.
Thanks!
signed, a worried mommy!
RE: 8 year old with rolandic epilepsy
Submitted by goodmomma on Tue, 2004-11-09 - 22:50
hello. my 6 1/2 year old son was recently diagnosed with rolandic epilepsy. Any information on this would be most appreciated.
signed, a very worried mommy who cant sleep at night.
hello. my 6 1/2 year old son was recently diagnosed with rolandic epilepsy. Any information on this would be most appreciated.
signed, a very worried mommy who cant sleep at night.