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A place for those who care for and about people with epilepsy - caring for yourselves as well as those around you.

Topic: Family & Friends

Created By: beeker | 2015-04-26 12:55 | 19 Views | 1 Comment

hi,

My Fiance has complex partial seziures and about two years ago a Doctor in Montreal put him on the drug Keppra. It is a wonderful drug when it works he will go months without seziures...

Created By: tigersfan168 | 2015-04-25 14:19 | 46 Views | 2 Comments

I had a tonic clonic seizure back in January, on the 8th, I then had an EEG and MRI on the 9th of February. My neurologist was optomistic it was a 1 time thing on January 24th and my step mom took...

Created By: jeff k | 2015-04-25 12:54 | 21 Views | 0 Comments

I have a 12 year old son who was born with a rare chromosome abnormality that we are calling 3X15 C or triplication of Chromosome 15 He suffers from  Intractable epilepsy that started when he...

Created By: RachelSproule | 2015-04-11 10:32 | 42 Views | 0 Comments

I have simple partial seizures due to seasonal allergies well controlled by topomax but if I was to have a seizure and I wouldn't want to "wake up" from it alone should I consider a seizure/...

Created By: RachelSproule | 2015-04-10 17:08 | 55 Views | 0 Comments

I was diagnosed with epilepsey when I was 10 years old it took my family and doctors forever to figure out what my trigger was (we found out this last year that my trigger was seasonal allergies...

Created By: Hasna | 2015-03-26 15:18 | 181 Views | 3 Comments

It startd through the past couple of months, my brother would have those moments where he'd be working, communicating or just normally going about his day, but all of the sudden he'd need a moment...

Created By: htjones93 | 2015-03-25 21:11 | 126 Views | 3 Comments

I was diagnosed with epilepsy when I was only a year old. I am now 21 years old, and still haven't gotten used to it. This forum is for anyone who needs help, or feels lost. If you have ever...

Created By: misseesu | 2015-03-22 20:49 | 147 Views | 1 Comment

In December I was scheduled for surgery. A week before my surgery my husband had his first seizure. We were in bed and he flew out and started shaking. He bit through his lip and was bleeding. I...

Created By: CStacy1 | 2015-03-02 08:03 | 174 Views | 1 Comment

I'm having trouble coping with my husband's epilepsy. He usually has partial seizures, they started last year. The doctors have no idea what's causing them, and all they're doing is increasing his...

Created By: photoaram | 2015-02-17 13:03 | 238 Views | 2 Comments

My little sister Irene was born on July 23, 1991. Prior to her third DPT shot, she began exhibiting “subtle episodes of eye fluttering” which our parents and pediatrician initially dismissed as...

Created By: sgwen1919 | 2015-02-02 22:21 | 147 Views | 0 Comments

http://www.gofundme.com/lbns14

I posted this fundraiser online to help give my dad who struggles with epilepsy the best birthday ever. He...

Created By: Kathy781 | 2015-01-31 18:00 | 208 Views | 1 Comment

Am I alone in how I feel about this? I live alone and have for several years. I am unable to drive with no means of transportation except for family and friends. I have a family member that tells...

Created By: 119567 | 2015-01-23 23:26 | 234 Views | 0 Comments

Hi,

I'm 15 and my dad has had frontal lobe epilepsy since he was about 30. His triggers are hunger, stress, physical stress, and lack of sleep. I am writing for any suggestions/similar...

Created By: 119567 | 2015-01-23 23:25 | 139 Views | 0 Comments

Hi,

I'm 15 and my dad has had frontal lobe epilepsy since he was about 30. His triggers are hunger, stress, physical stress, and lack of sleep. I am writing for any suggestions/similar...

Created By: FlorinClaudiu | 2015-01-12 03:56 | 180 Views | 0 Comments

Hello all,

I'm new here and desperate.

i'm the father of a 7 yrs old daughter.

She is disabled and has epilepsy since 1 yr old.

Last year we started Topamax , and she...

Created By: ingilizcekursu | 2015-01-09 07:31 | 154 Views | 0 Comments

5 brothers a good family

Created By: Grodo | 2014-12-13 02:34 | 721 Views | 1 Comment

Hello everyone,

I came with a question I've been asking myself for a few days ... maybe someone here can help.  

I work at an adult education center.There is a studentl there (age 28...

Created By: LandrethMN | 2014-12-10 15:56 | 198 Views | 1 Comment

Hi guys! I’m new to this website. I’m sorry in advance for this post being so long! I’ve had myoclonic jerks/twitches since I was about 8. Now I’m 21 and had my first tonic clonic seizure this...

Created By: vattempt | 2014-12-06 03:19 | 248 Views | 1 Comment

I have had epilepsy since I was 8. It has been over a decade and I have had ups and downs. My parents are overly protective of me well because I have epilepsy and secondly I am a girl.

I...

Created By: millerj6@sou.edu | 2014-11-15 20:02 | 265 Views | 1 Comment

Because I love you, maybe you should know

 

I fell to the floor,

but learned to arise from a fall.

I learned nobody was there to understand at all,

I learned to...

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