Community Forum

Topic: Epilepsy.com Help

Created By: uys | 2008-04-21 08:54 | 0 Comments

This is not Epilepsy related but as human beings we are obligated to do everything in our power to help save others - Please read this and send it on so that it can reach someone who can do...

Created By: epihelp | 2008-04-18 08:24 | 3 Comments

Hi everyone, I just wanted to share a few concerns and reminders with people.

1- Users should be registered with the site with one user name and address. Multiple user names are not...

Created By: justme222 | 2008-04-18 03:09 | 4 Comments

Hi

I was diagnosed with E, 2 year ago and am still trying to control my seizures.   I am not sure how many I am having, but guess approx 2 a month but not sure since I am on my own the...

Created By: Rett-parent | 2008-04-06 23:22 | 4 Comments

My dauther is 9 and presents with several different seizures, drop, clonic. myoclonic and etc.  She's been on several different meds and presently is on Keppra, Zonogram, and clonpine AND on the...

Created By: ROCKNROLL | 2008-04-05 19:51 | 17 Comments

HI EPI, I WONDER IF YOU COULD DO SOME DAMAGE CONTROL OR IF I SHOULD EMAIL WARREN SO THE ENTIRE COMMUNITY UNDERSTANDS THAT, LIKE ME, THERE ARE VISUALLY IMPAIRED PEOPLE ON THIS SITE WHO NEED ALL...

Created By: warren7 | 2008-04-03 23:37 | 4 Comments

Proposed GROUPS & FORUMS INTEGRATION

Hi all.

...
Created By: ValNewLife | 2008-04-02 11:11 | 33 Comments

Can anyone tell me the benefits of having "Buddies"...on this website, that is! :)  I thought maybe their profiles (that aren't public) would then be available, or that I would be able to talk to...

Created By: Birdie | 2008-04-01 20:15 | 1 Comment

  I'm really not sure as to the type of seizures I have anymore, even though I've been an Epileptic since 1959.  I've had all kinds since then.  Right now, I black out at times, and...

vns
Created By: userjake | 2008-03-29 19:38 | 2 Comments

I  have had epilepsy for many years. One year ago I had the vns implanted. I am still having seizures. It seems to work sometimes but not always. They have me on so many meds. I take keppra,...

Created By: epihelp | 2008-03-27 00:33 | 2 Comments

Hi everyone,

Tomorrow we will be launching revisions to the seizure diary to correct some bugs and make using the diary a lot easier. This is NOT the final version. We are working on...

Created By: epihelp | 2008-03-26 23:46 | 1 Comment

Hi everyone!

This weekend I am going to Washington DC to participate in the National Epilepsy Walk as part of the American Epilepsy Society's team. We hope to raise lots of money for...

Created By: epihelp | 2008-03-24 22:46 | 27 Comments

Hi everyone,

We had Dr. Steven Schachter join us this afternoon for a Question and Answer Chat on VNS Therapy. Here are a number of links to information on the site about VNS. I have...

Created By: scorpio | 2008-03-12 08:58 | 1 Comment

Am I right in feeling that many of those contributing to the
forum in the past are no longer doing so and that there are fewer contributions
per day than there used...

Created By: epihelp | 2008-02-26 21:48 | 0 Comments

Hi everyone! We had a great crowd in the Epilepsy Surgery Chat with Dr. Devinsky tonight. Here are some links to take you to information about surgery or related treatments that you may find...

Created By: susangibson | 2008-02-25 00:14 | 0 Comments

Hello, i was reading about tremors with depakote use, which Abby now has since we increased her dosage. How many of you use Carnitine?? its a prescription isnt it?  and do any of you give your...

Created By: rikorikojie | 2008-02-13 13:08 | 1 Comment

Im not a person living with epilepsy but is there different meds for different seizures or are the meds for the same reason and Im just wandering and is it to prevent side affects like AED cuases...

Created By: rikorikojie | 2008-02-08 13:51 | 26 Comments

can people with epilepsy drive? and Im wondering since they can have a siezure and might cuase a wreck

Created By: Elisha512 | 2008-01-31 14:14 | 3 Comments

I was wondering, can a caffiene withdrawal cause a seizure?

I am trying to rid my body of it's dependence on coffee, soda, etc for that jolt of energy to get through the day. It has...

Created By: ROCKNROLL | 2008-01-20 00:04 | 4 Comments

SOMETHING HAPPENED TO ME ABOUT A MONTH AGO THAT STILL WORRIES ME AND IS STILL CAUSING ME PAIN PROBLEMS. I WAS WALKING, WHEN INSTANTLY I DROPPED. WHAT I FELT PRECISELY WHEN IT HAPPENED IS THAT I...

Created By: Christopher Dean | 2008-01-15 12:53 | 1 Comment

I am new.

 

i recently had a partial focal which lasted for about 1 hour, which then lead to a generalized focal or psychogenic.

 

question:

1. how...

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The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.