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Seizures returning after being gone for years???

Mon, 04/18/2016 - 09:35
Hi, I am an almost 45 year old wife and mom of two sons (ages 17 and 19). I was dianosed with simple partial seizures about 15 years ago. I never lost consciousness with mine - I would just get a weird feeling inside my head, then the room would start moving and I couldn't focus on anything. I never lost consciousness and could even talk right through them - just couldn't focus my eyes. Not good when you're driving! It would last about 30 seconds. I failed two EEGs and was put on Topamax. I later switched to Zonegran. Both worked great and I never had the seizures for years. I was able to go off the meds about 6-7 years ago because I was seizure free and passed my EEGs. Fast forward to now, 6-7 years of no seizures. First day of my menstrual cycle, I got that really weird, dizzy sensation inside my head that I used to get right before the seizure, but I didn't get the actual seizure (although they say the auras are seizures too). Well, my head felt funny the rest of the day. I have been having this funny aura like feeling in my head (kind of feels lightheaded, as if something just isn't right with my vision, even though it is - can't describe it exactly). I have been having it on and off the last 4 days of my period. I am scared that the seizures are returning. My neuro moved away and there are waiting lists to see them in my area. I called my regular doctor and asked if he could get me in sooner. I don't like this feeling. So, has anyone here been seizure free for years (no meds) only to have them return? Do you think perimenopause has anything to do with it? Does anyone have these type of simple partial seizures (don't lose consciousness, can talk, just vision gets all screwy)? Thanks for any help you can provide.

Comments

Sorry, accidentally signed in

Submitted by my2boys99 on Tue, 2016-04-19 - 10:47
Sorry, accidentally signed in as my son in Google.  I'm not very computer savvy. 

I had epilepsy at 12-13yrs of

Submitted by Chinadragon888 on Mon, 2018-04-02 - 21:59
I had epilepsy at 12-13yrs of age and all I can remember is reading a book and then blanking out and going into convulsions as if being electrocuted, it was very scary and it happened twice on that day.Fortunately, a former nurse who worked at the primary school witnessed what was taking place and got me in the recovery position and got help for me in a timely manner.This happened 24-23 years ago in either 1993/1994, can't be specific on a date as a year it's a bit of a blur to remember exactly what happened.All I can remember is being rushed to hospital then sitting in the doctor's office after being tested in a MRI machine and wearing a cap with sensors on it afterwards to measure my brain waves.Fortunately, I've never had a fit again since then although I was on epilim tablets for a few years afterwards just in case.I still get twitchy eyes on occasion and have false fits if I get ill with flu but have thankfully grown out of it, although in the back of my mind is the fear it could come back even worse than before in some day in my future.

Hi , my name is Karen. I live

Submitted by Karen Pierce on Mon, 2018-05-28 - 01:03
Hi , my name is Karen. I live in Australia and was diagnosed at the age of 14. I knew I had something wrong throughout primary school but would tell my teacher that I had a migraine headache coming on. These funny things I never talked about. I had mine diagnosed after a dad with his son 4 years older than me, who had grandnal seizures  noticed them.  I had tried nearly every medication, but to no avail. I had my first op when I was 25 after heaps of tests to make sure everything was covered for my well being. I was still having seizures and on my own stopped the medication I was on and that made mine only become simple partial seizures. I got married 4 years later and the following year had my first son. One week after he was born the first complex partial fit happened and then the following 2 Fridays it happened again. Then I had clusters start all over again. On average 9-10 days without a fit, and then 2 to 3 on average, which was heaps better than before the op as I would go 3 to 4 weeks without any,then have up to 36 fits within 24 hours for 3 to 4 days. This would have me in hospital and given rivitrol introveinously. This would help give me a break and rest. The worst would be when I had gone 5-6 weeks w I thout them,them all hell would break loose. I stayed off all medication until my last son was born in 1999. I went back on lamictal but nothing had improved. When I was coming down off the lamictal I gelt a fit coming while standing at our sink. I tried to get to the table but didn't make it.  My mum found me and I had concussion pretty bad. Nine years later in 2009 I had my second lobectomy on my left side and I have not had a seizure for 9 years this coming November, and got my license for the first 3 years ago. I am now 52 years old. I hope for aĺl people out there would get the answers we all look for. My answers are always given to me first by The Lord. I have been through worse than epilepsy in my life, but I'm still here for a reason l. We are all very important people and I believe we should always remember that and always filfill our lives by reaching our dreams. God Bless anyone who has these trials in life. It is us that are the strongest and reliable to help anothet person out there.

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