Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Is my epilepsy back?

Tue, 05/06/2014 - 17:51

Hi all,

My name is Tessa. I'm new here.  

Between the ages of 2 and 6 I had a series of simple partial seizures, which climaxed in a pretty severe grand mal seizure when I was 6.  I took Dilantin until I was 12, at which point my doctor said that I had "outgrown" my epilepsy. 

I am now 20 and for the past two years I have been experiencing this weird déjà vu accompanied by a dropping feeling in my stomach (like on a roller coaster) and anxiety.  At first I brushed them off as panic attacks. However, today I have had six episodes accompanied by a severe headache and fatigue.  Normally, I only have one or two every couple of months. After doing some research, I was led here to a forum thread about temporal lobe seizures.  The posts there described my déjà vu feeling in the most accurate way I've ever read.

Could my epilepsy be back? What kinds of tests should I have done to make sure there's not something serious happening?

Comments

The test that need to be done

Submitted by Anonymous on Tue, 2014-05-06 - 21:42
The test that need to be done is an EEG. It could be epilepsy, but it could also be anxiety etc. Only a neuro can tell you after reading EEG results. It may take more than one. TLE only tells you where in the brain originates, but you don't know that. The deja vu that you are describing could simple partial seizures, Good luck

What you are experiancing are

Submitted by just_joe on Wed, 2014-06-11 - 16:01
What you are experiancing are seizures. You might want to research types of seizures and also types of epilepsy. As for being seizure free there are times when people have been seizure free for a period of time and their seizures do come back. Been there done that. I was seizure free for 3+ years and Doc was thinking of taking me off medications. Which never happened. One of my triggers is getting to hot to fast and working in a kitchen can do that with noo problems. I had to leave the idustry I loved and still do. That happened in hte mid 70's. I have friends that still ask for recipes or tips and yes they get food now and then considering bake bread and cinnamon rolls along with monkey bread. The tests that are rund in the ER are for several things, EKG for the heart to see if you have Afib or Atrial flutter which can cause heart attacks or strokes. Blood tests will show several things.The ones used for epilepsy are the EEG and CTscan or MRI. The EEG shows the electriacl output by the brain. If there is any abnormalities the area that came from will be known. The CT scan or the MRI will be looked at closer in those areas to see if there is anything in that area which can pretain to a seizure such as scar tissue from an injury or from a fevor if you had a real high one. There are some people that have their EEG's and other tests show normal but they still have epilepsy.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.