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Cortical Dysplasia
Thu, 10/14/2010 - 17:05Hi all
I am very new on here and hoping someone may be able to help
I am planning on adopting a 2yr old little one who has been diagnosed with Cortical Dysplasia and Hyperplasia
I have tried to google this condition and have become terrified and overwhelmed by the info
has anyone on here any experience
from what we can understand the little one has stiffening down one side, has had some vacent fits, was slow in walking but now at 19 months can stand and walk alone
little one is communicating normally
really not sure what the prognosis is for this condition and what the reality would be to parent this child
any advice would be really well recieved
Re: Cortical Dysplasia
Submitted by catire98 on Fri, 2010-10-15 - 13:18
My 6 year old daughter has cortical dysplacia with difficult to control epilepsy. In her case she has had seizures since birth and the most we have been seizure free is 3 months. For now, drugs can only help with the seizures but there is no cure for this condition other than surgery. In our case, Doctors are still debating on this option. It is hard to determine if the condition will get worse over time. Each patient is different. It all depends on the location and extend of the dysplacia as well as how well the patient reacts to the drugs if there are seizures present.