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Clobazam help

Thu, 11/02/2006 - 11:22

Topic: Epilepsy.com Help

Hi all, I am the father of a child that has EIEE (Early Infantile Epileptic Encephalopathy), with myoclonic seizures, the doctor tried several drugs, none has fully worked so far, he prescribed CLOBAZAM lately, but unfortunately, I live in the USA, and CLOBAZAM is not approved by the FDA (Food and Drug Administration), so we have to get it from overseas, I tried online pharmacies, with no luck, and I read on this website that one can buy it, the problem is "What is the address (URL) of that online pharmacy"? Please help!!! Thanks a lot, and god bless you!!! Jellouli My address is : SJELLOULI@YAHOO.COM

Comments

Re: Clobazam help

Submitted by nigela on Sat, 2008-12-27 - 21:42

I am the mother of a 5 year old who has seizures and his doctor now recomends clobazam but i can't seem to find it anywhere, is it possible for TONIALPHA please, to send me that phone number in New York so I can contact them. My son has had surgery as well but nothing has helped. If anyone knows of any other way of how I can get clobazam please help me out. I am desperate.

Thank you

Re: Clobazam help

Submitted by Missyat on Sun, 2008-12-28 - 14:42

My son was on it for a while, didn't help but I live in the Northwest and got 3 months worth for only $105.00.

Kevin's Epi called this place:

Marks Marine Pharmacy
239 S.E. Marine Drive,
Vancouver, B.C. V5X 2S4

Phone: 1-877-888-9265
Fax: 1-887-888-9805

Dr. used: Dr. Richard Heinrich

I hope this helps.

Missy, mom to Kevin 10 Years old, Doose or MAE Myoclonic Astatic Epilepsy

My son was on it for a while, didn't help but I live in the Northwest and got 3 months worth for only $105.00.

Kevin's Epi called this place:

Marks Marine Pharmacy
239 S.E. Marine Drive,
Vancouver, B.C. V5X 2S4

Phone: 1-877-888-9265
Fax: 1-887-888-9805

Dr. used: Dr. Richard Heinrich

I hope this helps.

Missy, mom to Kevin 10 Years old, Doose or MAE Myoclonic Astatic Epilepsy

Re: Clobazam help

Submitted by Anonymous on Sun, 2006-11-19 - 07:55

Did you get help on this? Talk to the treating doctor as there are ways of getting this through compassionate use protocol with the FDA. There are rules for getting drugs overseas that he or she can help with as well.

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