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Anyone out there??

Sun, 07/29/2007 - 00:46
Hi, I'm a 16 year old and experiencing mysterous "Spells. I have them about 17 times a day on average and they last about 10-12 min. I have been to several doctors, but nobody can explain them. I have made 4 20-hour trips to the Mayo clinic in MN in the last year. When I was up there I was hooked up to the EEG for 6 days. Once I was hooked up to the EEG the spells stopped. The dr assumed they were organic seizures and gave me some meds. But, nothing helped. To get a second opinion we went to an epileptologist in Omaha. There I was hooked up to the EEG again for 6 days. Once again the spells stopped. The dr now thinks that the spells are psychogenic even though a psychiatrist said that there is nothing to that. We are now basically left in the cold to fend for ourself without a plan. How can I go from 17-0 spells by being hooked up?? Could there be something in the EEG glue, environment...etc?? I have the following symptoms when I have a spell if you have any of these or other info please let me know~ My heart rate goes up Upset stomach Headache in one of two spots on my head...Ice pick headaches. My rt foot goes numb I also see videos...call me crazy, but it's scary...I see one of the three:Flying trains, rats and slime. When it is over I'm really tired Short term memory loss If you have any info please let me know!! Thanks and God Bless!

Comments

one question when you were

Submitted by Anonymous on Sat, 2015-02-21 - 15:24
one question when you were hooked up to a machine for 6 day s did you get more than your average sleep . if you did that could be the reason your simtoms stopped. if you think this fits you try to get more sleep every night 

Re: Anyone out there??

Submitted by Anonymous on Mon, 2007-07-30 - 19:25
Hi! Seizures can be hard to capture on EEG but don't give up. While events may not be epilepsy, you can't tell unless the events are recorded on EEG. Sometimes telemetry can be done at home - called ambulatory telemetry - and it's easier to capture the seizures in your own environment. Talk to the epilepsy specialists and see if this can be done.. Here's a link to general info on ambulatory telemetry.

ambulatory EEG telemetry

Epi_help

ambulatory EEG telemetry

Epi_help

Re: Re: Anyone out there??

Submitted by Stingrae26 on Tue, 2007-07-31 - 20:10
Thank you so very much for writing back! We asked our dr if we could do the ambulatory EEG and he told us that it was not practical. I don't get it. He said that it was pointless because they wouldn't have video or audio. BUT wouldn't that show seizures or not?? I tried to explain that and he wasn't in the mood to listen, I guess. Anymore info please let me know! Thanks~

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