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Topic: Epilepsy: Insights & Strategies

Created By: Seekinghelp123 | 2015-07-14 22:54 | 83 Views | 0 Comments

My brother is 34 years old and has had epilepsy since his early teens. He's gone years between seizures but within the last few years it's been more frequent, maybe a month or two in between...

Created By: Coping Hubby | 2015-04-06 00:23 | 230 Views | 0 Comments

Does anyone know,or have they had the VNS implant, and if so how are they doing? My wife has and appointment in June to get one because her seizures are becoming more impervious to her meds. Any...

Created By: OneSoFar | 2014-10-20 13:25 | 508 Views | 0 Comments

The reason that I am epileptic is due to a front and back brain injury (mosty the front) that occured almost 20 years ago. I've only actually had one seizure so far (recently), but my doctors say...

Created By: Eternal_Howl | 2014-10-16 19:34 | 409 Views | 0 Comments

I wasn't sure where to put this, but I need a moderator to assist me. I think this site has issues and now i have a post in a forum that I need removed. It's my post and the reason I want it...

Created By: Ramona1981 | 2014-10-14 11:10 | 599 Views | 1 Comment

I am a 32 year old female married with two little girls under the age of five. After trying several medications that did not control my seizures my doctor recommended the ketogenic diet! I am...

Created By: Candace21 | 2014-10-06 13:53 | 469 Views | 0 Comments

It took a long time for me get diagnosed because I am sensitive to chemicals/ fragrances.  It kept me isolated and in my house for 2-3 years. Finally, I was diagnosed with absence seizures and the...

Created By: robversion1973 | 2014-10-04 11:08 | 753 Views | 0 Comments

Since the age of 23, I have had what appear to, and diagnosed,  as having grandmal seizures. I have reached a point in my life where the fear of having a seizure is causing me so much fear that I...

Created By: soldier mike | 2014-09-18 05:23 | 921 Views | 0 Comments

Hello. My name is mike and 24. I was diagnosed in the ER yesterday as having focal seizures. I have had headaches for a few years. They usually hit as a sharp pain to one side of the head and last...

Created By: brandonsbongos | 2014-07-01 10:29 | 1307 Views | 1 Comment

Hello, 

I'm new to this forum and was diagnosed with epilepsy a few months ago after living with it for about 4 years. 

I have simple partial seizures, which I have narrowed down to...

Created By: rosanna1980 | 2013-11-03 14:00 | 1259 Views | 0 Comments

Hello Everyone!

In honor of Epilepsy Awareness Month, I have created a facebook page
strictly dedicated to epilepsy awareness. It is called "Seize My
Epilepsy". I don't have...

Created By: tlbeck20 | 2013-10-28 20:42 | 2549 Views | 7 Comments

IS it just me or are other epileptics out there finding it tough to either keep a job or has an employer that just does not get what epilepsy is, what it does to the individual, what kind of life...

Created By: Lenaespv | 2013-03-18 08:14 | 1806 Views | 1 Comment

Hi! We are four girls working on a project about epilepsy. We are thinking about developing a product (this is only in our minds, nothing serious) so we are checking out if this would be a product...

Created By: ingridpfau | 2013-01-30 17:52 | 1297 Views | 0 Comments

Hello Everyone.

I am new to my.epilepsy.com. But I have plenty to say about epilepsy. I just made a 5min film for the neurofilmfest about my personal experience with epilepsy entitled "...

Created By: sam1am | 2013-01-25 12:43 | 1168 Views | 0 Comments

Please go to https:/vimeo.com/57937802 and review my first draft of a video submission to the American Brain Fdn. for their Lets Cure Brain Disease contest. I also intend to adjust it to add to my...

Created By: sam1am | 2013-01-25 12:41 | 1149 Views | 0 Comments

Please go to https:/vimeo.com/57937802 and review my first draft of a video submission to the American Brain Fdn. for their Lets Cure Brain Disease contest. I also intend to adjust it to add to my...

Created By: duvexy | 2012-12-08 03:31 | 2235 Views | 0 Comments

Hello fellow friends and or doctors 

I would like to ask a question on what you have experienced, and or if you have experienced static electricity within your body?  Or, have you ever...

Created By: collie | 2012-10-06 08:25 | 1362 Views | 0 Comments

EVERYONE THE MONTH OF OCTOBER IS PURPLE PUMPKIN PROJECT. WE ARE TRYING TO GET EVERYONE AROUND THE WORLD TO PAINT A PUMPKIN PURPLE FOR EPILEPSY. IF YOU READ THIS PLEASE PAINT A PUMPKIN AND...

Created By: chris1506 | 2012-04-05 00:59 | 1459 Views | 1 Comment

I am 36yrs old, and have recently experienced my 5th seizure in 11yrs. The 1st was in April, 2001, 2nd was Sept, 2001, then I had almost a 3 1/yr break, and had my 3rd in Jan/Feb, 2005, the 4th...

Created By: Honey5678 | 2012-01-27 22:44 | 1215 Views | 0 Comments

Hello fellow epileptics!

I am here to share my amazing story with all of u and am also in search for
anyone who might have a similar experience. I am a 22 yr old woman living
in...

Created By: gabesbee | 2012-01-22 18:03 | 2543 Views | 5 Comments

I just had an extensive EEG w Video monitoring for 3 days at home. The adhesive won't wash off my hair. I have washed it and conditioned it 2 times. I have abrasions from the cleaner they used...

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