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Topic: Diagnostic Dilemmas and Testing

Created By: JenSpendlove | 2012-04-03 18:27 | 214 Views | 0 Comments

I was told by my neurologist today that I need to have a video eeg. After researching exactly what that is, I feel I cannot possible do it. I am a survivor of extreme childhood abuse (likely the...

Created By: aggy84 | 2012-04-03 04:26 | 2263 Views | 8 Comments

Hi all!

 Wow, to say I've been on a journey is an understatement.  I've suffered from what I thought was panic/anxiety attacks for coming on 7 years.  I'm 27 years old and this has...

Created By: lewellyn1 | 2012-03-08 10:31 | 176 Views | 0 Comments

Hi,

I have had tonic-clonic seizures about every 6-8 months for the last four years.  I am currently on Lamictal (just switched from the generic lamotrigine).  I recently had another EEG...

Created By: Masterjen | 2012-03-01 13:25 | 619 Views | 2 Comments

Hi, I am hoping someone can explain to me the difference between MRI with contrast and an MRS, and how they relate to seizure diagnosis. And, why are these considered more diagnostically helpful...

Created By: beautifulgirl71 | 2012-02-18 12:18 | 448 Views | 3 Comments

I need help finding a clinical diagnosis for my son who I believe has absent/petit mal siezures. He has had EEG's and MRIs that have been 'normal', or 'not significant'. I do know that not all...

Created By: micncar | 2012-02-10 14:29 | 807 Views | 1 Comment

Hello Everyone,

I just had an EEG to r/o seizures. I looked at the cd and throughout the entire 72hr eeg there were XL spikes and XL events. The report states normal eeg. It doesn't look...

Created By: rayraykay | 2012-02-07 23:49 | 203 Views | 0 Comments

Anyone have experience with nonconvulsive status epilepticus? My sister in law has had epilepsy for 20 yrs since she was 13 no known cause 4 days ago my crazy mother in law took her off her meds...

Created By: BendyPianist | 2012-02-07 17:06 | 220 Views | 0 Comments

I recently had an ambulatory EEG. The doctor told me that my seizures were Psychogenic Non-Epileptic Seizures (stress-induced). I asked for a copy of the report because I did not feel that it was...

Created By: fleamcgee | 2012-02-07 08:42 | 428 Views | 2 Comments

Hi All,

I have a 23 year old daughter who has been diagnosed with Rolandic Epilepsy, has had 3 mris with normal reports but EEG with the expected spiking and...

Created By: aj85 | 2012-02-03 13:35 | 318 Views | 0 Comments

Hi, everyone! My first time posting here. I've had seizures for about 6 months. Started as a once a month type of thing. But now in January it's been a couple of times a week. They happened...

Created By: 414NZA | 2012-01-29 02:27 | 321 Views | 1 Comment

I was reading an old forum from '08 about someone having seizures from smoking marijuana. A lot of people seemed to believe that weed stops seizures, so I thought I'd join and post a forum based...

Created By: Jodie Powell | 2012-01-27 22:26 | 210 Views | 0 Comments

If you have been just diagnosed, eeg's and other tests are all normal, not responding to medications, have extreme fatigue, digestive issues that cannot be explained, joint pain, and other...

Created By: columbia.epilepsy.study | 2012-01-25 16:01 | 168 Views | 0 Comments

Hey everyone,

I am part of a study at Columbia University which hopes to build upon the collected wisdom of people living with epilepsy to inform research about how people take control of...

Created By: caandahl | 2012-01-19 10:19 | 307 Views | 0 Comments

I went to the records department at childrens and got a copy,I called the developmental pediatrician and she is going to consult w/neuro.
it said he had frequent discharges that increased...

Created By: krc90 | 2012-01-15 13:22 | 468 Views | 1 Comment

Hello..

I am writing to you all today because I am very nervous about something. It may seem funny, or stupid, or crazy, I don't know. But I feel like I can't ever find an answer that will...

Created By: topbanana | 2012-01-14 09:26 | 205 Views | 0 Comments

Hi,

I am just wondering what "phase reversal" means on my child's abnormal EEGs. She has complex partial seizures always with spikes and sharp waves and phase reversal over P2-P4. I know...

Created By: allegroismyhorse | 2012-01-11 17:05 | 448 Views | 1 Comment

Okay, so I recently got diagnosed with the autism spectrum disorder, Aspergers. I already have epilepsy but I'm trying to more understand the link between epilepsy and autism. Could you please...

Created By: rosemarycmi | 2012-01-10 17:29 | 211 Views | 0 Comments

Hi, I don't know if anyone can help me but here goes.  In August of last year I woke up with a headach on the right side of my head.  I went and got myself a glass of juice and when I finished it...

Created By: Motsy802 | 2012-01-06 15:12 | 270 Views | 0 Comments

Hi, I'm new to this website, and I could really use some insight if you don't mind. My son is 4 years old, and two years ago he had a febrile seizure. It was a grand mal, and he had been running a...

Created By: Dori | 2012-01-04 15:40 | 589 Views | 3 Comments

My 13 year old daughter is a candidate for surgery. She has complex partial seizures that at times generalize into hours long status seizures that are life threatening. She's already undergone...

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