Topic: Diagnostic Dilemmas and Testing

Created By: heidi | 2007-05-22 11:20 | 230 Views | 1 Comment

I post pretty sporadically, so for those of you that have never read anything of mine, here's my "adventure" in a nutshell: I have been tentatively diagnosed with TLE. Despite never catching any...

Created By: kellyissteller | 2007-05-21 17:33 | 322 Views | 1 Comment

Hey I'm 16 and just got an MRI, I get them often and this time a cist appeared in my pineal(sp?) gland. Has this happened to anyone else?

Created By: lb34 | 2007-05-20 23:19 | 8984 Views | 22 Comments

Looking to see if there are any other women out there with adult onset epilepsy with the complication of migraines and breakthrough complex partial seizures. My tonic clonic seizures have been...

Created By: mcdonaja | 2007-05-08 20:01 | 177 Views | 1 Comment

Been awhile since my last post. Have been waiting months for a bed to come open at our local hospital.

Things are looking up. We changed neurologists because of conflicts we had with...

Created By: Katvwolf | 2007-05-07 23:21 | 5203 Views | 6 Comments

I had a sleep deprived EEG today, as my doctor suspects I may have epilepsy.

During the part where they have you close your eyes and they stick a strobe light in your face, blinking it at...

Created By: artsmart | 2007-05-07 19:23 | 233 Views | 1 Comment

The neurologist said it sounds like I had been experiencing seizures. Went on this great website and yes it sounds like the symptoms of Partial Seizures. So have had a sleep deprived eeg. No...

Created By: lhenchak | 2007-05-06 21:47 | 3541 Views | 4 Comments

Our family was exposed to low-level chronic carbon monoxide over this past winter. We discovered it when my 13-year-old son started having seizures. The rest of us were just experiencing heart...

Created By: Sarahj | 2007-05-04 05:09 | 849 Views | 1 Comment

Hi my names Sarah and I first started experiencing 'funny turns' quite a few years ago when i was 19-20.?? The specialist sent me for eeg and mri which showed nothing and he essentially told me he...

Created By: Lizzi12 | 2007-05-02 09:09 | 1144 Views | 2 Comments

Hi I'm new here-sorry this is long.
I have been operated twice on my brainstem (and have been a little disabled since then). Since my first operation 4 years ago I have been having wierd...

Created By: alex1304 | 2007-04-30 14:31 | 278 Views | 0 Comments

Can anybody tell me if they heard about this clinic, have they been treated there for E and would they recommend it. I just want to know people's good and bad experiences, recommendations...etc...

Created By: marshall | 2007-04-29 09:54 | 282 Views | 2 Comments

OK, can you believe this. Today I put on an ambulatory unit, the previous 5 of 7 days I had seizures and I am hoping to have an event recorded. So far in my past 10 attempts I havent been lucky...

Created By: lovies | 2007-04-29 09:14 | 288 Views | 2 Comments

Has anyone here heard of a "pre seziure"? I had tremors & stiffness yesterday (I stayed awake the whole time) and went to the ER and they said it was a pre seziure. I have had Epilepsy since I...

Created By: forestams | 2007-04-28 20:35 | 213 Views | 0 Comments

I was diagnosed with Ep after having a brain tumor found and removed and as such I have MRI's every year to track stuff and what not- but what has started to bug as of late is why perhaps my...

Created By: amuffet | 2007-04-26 18:10 | 5608 Views | 9 Comments

I have had epilepsy for eleven years now. God, it sounds like so long when I say that. Anyway as with most people's seizures my doctor can give me very few answers about the cause of my seizures...

Created By: tuckster | 2007-04-25 02:21 | 304 Views | 3 Comments

Does anyone know anything about the MEG test and how important are they

Created By: GraciesmomJoanna | 2007-04-23 22:46 | 455 Views | 1 Comment

I am new to this site. My 11 month old, Gracie has myoclonic and atonic seizures. She was diagnosed with myoclonic in January, treated with Kepra which stopped the myoclonic episodes but then the...

Created By: Shellfia | 2007-04-21 22:20 | 221 Views | 1 Comment

Recently I was at work and performing Reception type duties. As I was entering data into the computer, I was also speaking with a customer. I started feeling a little odd and the customer went and...

Created By: bunni | 2007-04-20 18:16 | 320 Views | 3 Comments

I am not even sure if I belong on here. Where to start... I have had these funny episodes at night when waking up, or rather I wake up cause I can feel them (whatever they are) coming on. I feel...

Created By: Lgreenstein | 2007-04-20 11:50 | 325 Views | 0 Comments

My story of being diagnosed with Epilepsy and all of the testing and drugs that I was on for 9 years is a long one. My neurologist said I would be on Tegratol for the rest of my life. And even...

Created By: fufu967 | 2007-04-19 18:58 | 1357 Views | 1 Comment

We just found out today that my daughter had an abnormal EEG result. I insisted to the ER doctor 2 weeks ago that she had a seizure. My aunt was Epileptic and I watched her have seizures for my...

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