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VERY IMPORTANT PARTIAL COMPLEX INFO

Mon, 08/20/2007 - 22:17
well i now know that neuros and epi spec dont know everything, after my big scare around 2am or what ever it was i dont know really. i had a partial complex when i went to get a migraine pill and then when my hubby went to look for me i colasped nto his arms. he laid me on the floor and i wasnt breathing and my hubby woke my youngest son who knew cpr. he couldnt find a pulse, and did cpr and i started coughing ,then i would stop breathing and he blow in my mouth and and i cough again,so by the time the emt were ther i was i just stopped breathing a few more times and then they took me to the hospital. this is what i was told, i woke up as they were unloading me at the hospital, very confused. of course they checked with my neuro who said it wasnt a neuro problem, and they checked with another neuro at there main hospital in town and he said not a neuro problem. admited, about 8 am internist came by talked to me said neuro problem. sent home that evening. talked to cardio doc on call on sat said need to come in on monday and see cardio doc i went into the cardio doc's, had a ekg. was ok. my blood work from 3 weeks ago was good, the ecko of my heart from 3 weeks ago shows no change in the leaky valve. he also said we have got to get my seizures controled better and was concerned that i was seeing a neuro that was working hard on controling them, i said yes, he was a epi spec that works on uncontrolable seizures. he said well he needs to work harder, after all the seizures you had here when you were in for your stress test, and now this. he said he was very concerned. now for the surprizing info, my cardio doc told me that at the end of a partial complex seizure, it is not uncommon for patients to stop breathing. he was saying that the best thing to do is lay the person down and wait for them to start to breath again, in most cases people will begin to breathe within a minute. if it goes past, then blow air in the mouth and check for breathing. repeat until breathing. if cant get breathing started call 911. and continue breathing into mouth. he said that the pulse was there but to weak to feel. this is all news to me, so i looked it up on th internet and found a small amount of info about this very thing. it seems it is not something they want us to know, i found the most info on a page on pediatrics and partial complex seizures and the importance of having oxygen available. well i found a small piece on adults too, stopping breathing with partial complex seizures.

Comments

Re: VERY IMPORTANT PARTIAL COMPLEX INFO

Submitted by kaidi on Fri, 2007-08-24 - 16:01
I would second that. My neuro never bothered to mention it to me, but it's true that every time I have a seizure, when I wake up I realize I haven't been breathing and it takes a long time to catch my breath. It may even account for why I have such a pounding headache when I wake up from my seizures...

Re: Re: VERY IMPORTANT PARTIAL COMPLEX INFO

Submitted by banffgirl on Fri, 2007-08-24 - 17:55
that is very true, and i know my head was about to explode after that. i am sorry you have to go thru that every time. i found out in chat that there are quite a few this hapens to and alot that never heard of it. so i am glad i wrote my story since our docs think its not important info. have great day kaidi, banffgirl

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