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So many diagnosis?

Mon, 05/07/2007 - 19:23
The neurologist said it sounds like I had been experiencing seizures. Went on this great website and yes it sounds like the symptoms of Partial Seizures. So have had a sleep deprived eeg. No recorded seizures? They put me on Keppra. Went off of it after a week. Still in shock that I could be have been having seizures I wanted a 4 day hospital say with a veeg sleep deprived, lights, hyperventations the whole thing. Still no recorded eeg? Now the Doctors believe it could be Periodic Paralyses. Or it could be Fibromyalgia. If I hadn't pushed for the tests I would still be on Keppra and wondering what my life would be like with having seizures. Truthfully we are still not sure what is causing my symptoms. It could still be seizures. Just don't sit back and go by what a couple of doctors say. They seem to really be pushing the medications lately when the diagnosis is foggy. (Like my head most of the time:)

Comments

Re: So many diagnosis?

Submitted by Prisonerinmyownbody on Wed, 2007-06-27 - 04:14
I am on Topamax now and it seems to be working better w/ seisures comming on from my other complicated health issue. I have been having upper abdominal problams for a long time and that has gotten in the way. My ep only started 2 1/2 years ago and they said it was meds then they were certain it was JME now they have "conclusive" tests it is a certain frontal lobe epilepsy and I trust this Dr most. I did have migraines before all of this though and Topamax did not help I am still on maxalt for the cluster of migraines and dealing w/ my stomach surgeries still. I was put on lamictal first for LME though and it gave me major problems uncoordination,speech problems stills, short term memory loss, I thought I had MS(multiple sclerosis) because I looked just liked my friends mom who has it, I am only 20 right and I had to weed that med out....still spacey and no honor roll anymore...especially in english. But now, my fevers and insomnia are causing seizures in my sleep, I wake up bit tongue and that same seizure feeling when I have my grand mals...when I had a Boyfriend he saw me have them in my sleep too, no grand mal lately though I am on 600mg of topamax. I need help and I really hope this might help.

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