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Simple Partial Seizure?
Thu, 08/02/2012 - 13:02I wish someone could help me identify and understand the episodes I have. I'm 26 years old, and for as long as I can remember I have been experiencing these...occurrences. I used to think they were what others called "deja vu", but as I got older I realized it wasn't supposed to be a frightening experience.
About once a month I have these clustered episodes (maybe 3-4 times a day, 5 or so days in a row). I begin to experience overwhelming deja vu - almost as if I've dreamed what is happening/about to happen. Everything going on around me (people talking or whatever I am doing at the time) begins to really scare me and get me aggitated. The feeling of fear is so overwhelming, and it's weird because it's seemingly not brought on by anything. Sometimes I get a sinking feeling in my stomach during these episodes, and occasionally I'll get flushed on my chest and neck.
If I'm in a situation where I can't get away, I feel terribly anxious, so thankfully these moments only last about a minute. If I need to act totally normal, I usually can. Though because of the deja vu and fear, I prefer to do something out of the ordinary to get me out of it (not sure that actually helps, it's just what I tend to do).
I talked to my doc about these, she said it was anxiety and/or panic attacks. I have experienced panic attacks before - that is not what these episodes are. Sometimes these strange things happen when I am asleep, totally un provoked. The neuro that she sent me to kind of brushed me off, but eventually had me do a 24 hour ambulatory EEG. Did not have any episodes during this time, so it wasn't helpful. I also did an MRI (woah, those are scary!!) that showed nothing.
I'm at a loss. I hate when these episodes occur, but maybe this is just something I need to live with. Several years ago I looked up my symptoms and Simple Partial Seizures seemed the best explanation! What do you guys think? I'm in one of my cluster spells so feeling a bit desperate and lonely. Does anyone else have symptoms like this or helpful words? Thanks :)
Comments
Re: Simple Partial Seizure?
Submitted by jimmieD on Thu, 2012-08-02 - 20:32
hello im 23 ive been having simple partial seizures as long as i can remember but didint know they were seizures until i had a tonic clonic seizure, they gace me an eeg in the hospital an another 1 a couple months ago didnt show much tho. when i have 1 i feel a strange feeling in my stomach which spreads 2 my body, i get cold sweats, i feel like ive been there b4 an everything is so vivid, i used 2 enjoy them b4 i knew wat they were but know i get pretty freaked out like somethin bad is going 2 happen i also chew but there is nothin in my mouth it only lasts about 20 sec sometimes up 2 2 min tho but rarley, i used 2 think it was just deja vu b4 i found out wat they were, its also common 2 have them in ur sleep or like half asleep an half awake at least thts how i feel, i would maybe change ur nuero an think about meds not 2 scare u but something not so great could possibly happen during ur spell an its something 2 watch out 4 during drivin an wat not. i can understand how u feel bout bein lonley an wat not it sux not bein able 2 have somebody 2 relate 2 bout it. but plenty of people live normal lives wit epilepsy so i would just try an get a diagnosis, but hope this helped a lil an hope things are well
jimmie
hello im 23 ive been having simple partial seizures as long as i can remember but didint know they were seizures until i had a tonic clonic seizure, they gace me an eeg in the hospital an another 1 a couple months ago didnt show much tho. when i have 1 i feel a strange feeling in my stomach which spreads 2 my body, i get cold sweats, i feel like ive been there b4 an everything is so vivid, i used 2 enjoy them b4 i knew wat they were but know i get pretty freaked out like somethin bad is going 2 happen i also chew but there is nothin in my mouth it only lasts about 20 sec sometimes up 2 2 min tho but rarley, i used 2 think it was just deja vu b4 i found out wat they were, its also common 2 have them in ur sleep or like half asleep an half awake at least thts how i feel, i would maybe change ur nuero an think about meds not 2 scare u but something not so great could possibly happen during ur spell an its something 2 watch out 4 during drivin an wat not. i can understand how u feel bout bein lonley an wat not it sux not bein able 2 have somebody 2 relate 2 bout it. but plenty of people live normal lives wit epilepsy so i would just try an get a diagnosis, but hope this helped a lil an hope things are well
jimmie
Re: Simple Partial Seizure?
Submitted by Kells621 on Thu, 2012-08-02 - 19:25
These episodes may very well be seizures. When I was younger, I had similar episodes and my doctor sent me to a psychiatrist who told me they were panic attacks and prescribed me with paxil and i continued to have them for several years.... So for a good 3 years I was being told that my seizures were panic attacks. It took me eventually having a tonic clonic seizure several years later for my doctor to order me an eeg....I got lucky because even though I didn't have a seizure during the EEG, they caught a couple of sharps on the eeg. Even though it's a possibility that they aren't seizures, you know yourself best and you know when something isn't right. Don't give up. 24 hours isn't always enough to catch seizure activity. I've had many eegs done where there is no seizure activity but that doesn't mean I don't have seizures. Ask your doctor if you can try the ambulatory eeg again. Change doctors if yours are not fully supportive.