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Seizure or Narcolepsy?

Tue, 09/23/2014 - 07:55

I have always had poor circulation and sleep 12 or more hours a day. when i was little when i would stand my arms and legs would turn purple and i would get "dizzy" if i stood or sat or too long. i would also space out a lot and my mother would think i was ignoring her and "in my own little world" but i never thouht i was spacing out. its  just blank, i would be talking to her then next thing i knew she would be freaking out about me not listining or kids in my class at school would freak out about me staring at them when i wasnt. when i was 12 i started getting this "dizziness" or numbness in my head i would loose my balance easily and black out a lot (i dont know what happened to me when i would black out i would be doing something then wake up on the floor i was always alone when these blackouts would happen so i dont know what hapened during them.) sometimes when i was "dizzy" my vision would tunnel and sometimes it would look like i was looking at everything through black and white static. when i was 16 i started having what looks like seizures they start with dizziness that can last from 20mins to an hour beore the "seizure"(i say seizure for lack of a better word) i get a sharp pain in my temple behind my right eye i collapse then my muscles tense up and i shake i dont move i just shake sometimes i can hear whats going on around me but sometimes i black out. my eyes roll to the back of my head and move  around. sometimes i hallucinate terrible things but more often i dont. if i have to use the bathroom when i have a seizure (really badly) i pee myself sometimes and if i have diareahhea i can poo myself a little during these "seizures" wich is very embarassing. sometimes i even stop breathing long enough to turn blue .when these are done im very dizzy and sound drunk it is very hard for me to move i can move it just takes way too much effort to even hold an empty cup.  they seem to be triggered by high pitched noises and changes in temperature and any high temperature or if something touches my neck. i have had many tests. all the tests that have been done say its not epelipesy i have been on keppra and it didnt seem to help. my doctors still think it could be epelipsy just further in the brain for the machienes to pick up but they are also thinking it could be narcolepsy with catoplexys because i sleep so much. but with narcolepsy  youre always concious when you have a catoplexy and sometimes i loose my conciousness. more often than not im unconcious but sometime i can remember what caused my "seizure".it is very conusing and scary this has been going on for almost 4 years. im just wondering what could be going on. if anyone may know what this could be it would really help.

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