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Problems with specialist
Thu, 06/18/2015 - 18:10so I just had my epileptologist appointment today and at first it went well. I ended up having a breakthrough during my appointment. During my seizures my legs will go numb, like paralyzed feeling and I can't walk or move them until about an hour or so after when the feeling comes back and the seizure subsides. Because of this alone my specialist thinks they're psychological because he's never had a patient with epilepsy where their seizures cause their legs to go numb. Then when he asked about my past he really was dead set on psychological because of what I've been through, but all those past problems were dealt with, treated, and I was labeled as healthy after treatment and taken off medications because I no longer had those issues. My problem is that my seizures have been the exact same every single time and haven't changed. When they put me on keppra, they stopped completely. When my body got used to the dosage I started having breakthroughs so the doctor that prescribed the keppra increased it and they stopped again. It's been over a month since my last increase and I started having mini breakthroughs again. I don't believe they're psychological at all. I can pin point in my brain exactly where they start everytime and I can feel it move to the other side of my brain, it feels like a needle shoved inside my brain with fire ants exploding from those two points. And it's never changed, always the same feeling. He scheduled me to go to an EMU for 3-7 days this Monday morning and I'm praying I can prove to him that they're not psychological. Any input or advice from anybody will help me relax.
My first and only other EEG
Submitted by AMPetti on Thu, 2015-06-18 - 22:59
My first and only other EEG was a sleep deprived one and nothing showed up. That was also when I was on my keppra and was seizure free for a couple weeks when I went in. He used that against me too. He kept referring to the pain I feel in my head as a headache and I kept saying it isn't, it's a different kind of pain not at all like a headache. I'm really praying this EMU stay proves what I know I'm feeling. It's been the same since day 1, no changes.