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Please Help-Possible Seizures?!

Thu, 03/06/2008 - 18:46

Hi there. I'm 24, female and currently undergoing diagnosis. I have undiagnosed DiD and was diagnosed with Anxiety/PTSD several years ago, but currently not on medication. I have a history of sleep paralysis and hypnogogic hallucinations. I have tremors in my left arm and notice the muscles in my arm temporarily weaken when startled. Last year and a half I have been experiencing seizure-like episodes. I am seeing a neurologist and have ruled out Epilepsy through CAT, EEG, EKG, MRI (cranial, cervical, lumbar), Echo Cardiogram, Spinal Tap. All tests returned normal. He has been stumped for 6 months.


I feel like I'm staying conscious during a seizure of some sort. They have taken place every 3 or 4 months for the last year and a half, always during my sleep, except one in Sept in the middle of the day. No one has witnessed one as I have always been alone when they've happened. I just had another one this past Sunday.


My concern are the seizure-like episodes. I'm asleep and wake up to feel my left foot twitching; it cramps up, I lose control as a snaking sensation begins traveling up my body. Nothing I can do to stop it; feels as if I am being twisted in a vice, being unraveled or like my entire body is corkscrewed and is untwisting from the bottom up. The entire episode is very excruciatingly painful, very disorienting and I only have a vague awareness of what's happening. This sensation courses up my body and once it reaches my head I lose consciousness. Once I come to, the inside of my lower lip is torn up and bleeding as if I bit down hard on it, speech is slightly slurred, have trouble focusing and coordination is a bit off.


What am I experiencing? I am desperate for answers after so long without a diagnosis.

 

-Kishar

Comments

Re: Please Help-Possible Seizures?!

Submitted by susangibson on Thu, 2008-03-06 - 20:18
sounds very much like a seizure.  and people can have normal eeg's with epilepsy, and also have no known cause, nothing to see on an MRI. what happens during sleep paralysis? what is hypnogogic hallucinations?  maybe a week long video eeg might show some activity.

Re: Please Help-Possible Seizures?!

Submitted by whitetigrus on Mon, 2008-03-24 - 20:33
I agree, ask your Neuro for VEEG!  It's a week long video taped EEG without meds so that you have seizures and the doctors can determine and even show you what type you have! 

Re: Please Help-Possible Seizures?!

Submitted by SunflowerPower on Fri, 2008-03-28 - 22:56
sounds like it's time for a second opinion

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