The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Not sure what to do

Mon, 08/17/2015 - 13:28
In April of this year, I had what I call my first of many episodes. I get dizzy room sways feels like someone is spinning my brain. SeverE headaches, extreme vertigo. That comes in short bursts but it can last all day. Vision. Had changed I get moments of "checking out" as my husband says. It can be one or two a day to 100+ a day. I have had a EEG which showed nothing And a 72 hour videology AEEG coming up. I get brain fog, difficult to concentrate, hard to think of words. My other symptoms are: Tingles in face One sided convolutions Vomiting Nausea Hearing things that are not there Legs giving out Right side muscle fatigue Twinge Migraines Blurry vision Double vision Feeling like I am on a boat Slow motion feeling. Bright lights with eyes open and closed. Anyone with a thought what could be going on?

Comments

Most of what you listed could

Submitted by just_joe on Mon, 2015-08-17 - 17:00
Most of what you listed could be in different seizures. If you have only had the 1 EEG then fine. I had 20+25 different EEG's all came back normal. But that that time I was having several different kinds of seizures. It wasn't until I fell asleep in another EEG that the neurologists found abnormalities (seizure activity).One or 2 a day is fine but to have 100 they are clustering which isn't good and does wear the person out since each seizure drains energy.The 72 hour EEG will bring up more information, It being a video EEG also shows what is happening during the day.. Generally you will be in a monitoring unit so take something with your. Your laptop so you can keep up with the news and do have friends and family come by. I took movies with me and watched them. Things are a bit different today since I was in one about 10 years ago.I hope this helps and you do get the assistance you needJoe

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.