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nocturna and daytime seizures

Fri, 08/22/2014 - 18:32
I have a dilemma I recently saw a neuro and I will did not want to tell everything him about my seizures because I am suppose to have PNES so I am taking my medication we said they were stress ones, I am certain they might be epileptic due to pain & injuries when I wake up. and I legitimately feel like they are not epileptic. except the color dots and blob's blanking out and other vision things though I think I have had a generalized seizure's,thankfully not during the day outside our home or around other people and I believe I have breathing problems sometimes . I am confused at to what I should do because one side I hate dealing with any of it , then on other I don't care .

Comments

So you hate dealing with any

Submitted by just_joe on Fri, 2014-08-22 - 22:36
So you hate dealing with any of it and/or you don't care. With your post it seems you do care and want your issues resolved.National Seizure Disorders Foundation (NSDF)has come face to face with the question “PNES, is it a seizure disorder or neurological mystery?Many times people with PNES have seizures which mimic grand mal and other types of seizures. Research is still being done. The VEEG which is generally a 4-5 day EEG while being videoed show the seizures if any are seen. The EEG will also ge showing the electrical impulses going off in the brain. With the VEEG a diagnosis can be made by an eleptologist who will say one way ot hte other. Mis diagnosises are made some going one way  and others the other way. A few quick facts:
  • PNES attacks are sometimes called pseudoseizures, “psychogenic non-epileptic seizures” (PNES) is now the preferred term.
  • PNES are the most common condition misdiagnosed as epilepsy.
  • PNES are not rare, with a frequency comparable to multiple sclerosis.
  • In general, 1 in 5 of patients sent to epilepsy centers for difficult seizures is found to have PNES instead of epileptic seizures
  • 75 % of PNES survivors are women
  • Most reliable test to make the diagnosis is long term EEG-video monitoring with which diagnosis can be made with a nearly 100% certainty.
  • About 80% seizure survivors have been misdiagnosed because much of the diagnosis relies on descriptions reported by observers.
  • Upon correct diagnosis it is reported about 10% of PNES survivors also have epilepsy
  • PNES attacks are sometimes called pseudoseizures, “psychogenic non-epileptic seizures” (PNES) is now the preferred term.
  • PNES are the most common condition misdiagnosed as epilepsy.
  • PNES are not rare, with a frequency comparable to multiple sclerosis.
  • In general, 1 in 5 of patients sent to epilepsy centers for difficult seizures is found to have PNES instead of epileptic seizures
  • 75 % of PNES survivors are women
  • Most reliable test to make the diagnosis is long term EEG-video monitoring with which diagnosis can be made with a nearly 100% certainty.
  • About 80% seizure survivors have been misdiagnosed because much of the diagnosis relies on descriptions reported by observers.
  • Upon correct diagnosis it is reported about 10% of PNES survivors also have epilepsy

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