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New Diagnosis

Tue, 06/24/2014 - 20:22

Hi, about 2 years ago, I started having what I thought was vertigo due to a possible sinus infection. Strange sensations in the center of my forehead with a spinning like feeling. After experiencing sensations of water being poured over my head I decided to see a doctor. (on a side note- I also developed tiny muscle tics all over by body. head, leg, feet, hands etc) I was cleared of a sinus infection and told it was possibly sesonal allergies. I was given a kenalog? shot and sent home.

I continued to have the reoccuring issues for several months later, when I finally told my NP (that was treating my anxiety) these things had not gone away. She recommended I see a Neurologist. I then under went a 2 hour sleep dep study. The Neuro told me I have episodes typical of clonic tonic seizures and I am just short of being diagnosed with Narcolepsy.

This Neuro proceeded to overdose me at toxic levels on Depacote. While it did stop the sensations and slow the tics, I was toxic. Several med changes later I went for a second opinion at MINCEP. There I stated for 10 days with an EEG. They did everything they could to try and get an event out of me. But NOTHING!!!

All They could tell me is that I have a abnormal eeg reading in my left temporal lobe. I have never had any head injuries or prior seizures. So, I continue to take Lamictal (which keeps the sensations at 0 and the ticks at mild - Which drives me insane) for a diagnosis that Neuros just won't quit give me.

Please...... Help me. Am I on the right path? Any advice or similar experiences would help. I feel so alone and depressed. I understand this is minor to other people but I am so tired and scared.

Other Symptoms- Severe Memory Loss ( I put the milk in the cupboard), I have a hard time spelling easy words (pardon any spelling mistakes), cordination is not as good as it used to be. These all got worse when the symptoms started.

 

Comments

Welcome Scott What you posted

Submitted by just_joe on Thu, 2014-06-26 - 14:12
Welcome Scott What you posted can be in different types of seizures. The prescriptions you were given control seizures. A medication that works for one person may not for the next. Which is what happened with Depakote. All They could tell me is that I have a abnormal eeg reading in my left temporal lobe  They did everything they could to try and get an event out of me. But NOTHING   As for your systems those do happen and they did to me but after your body gets used to your medications many of those can go away. My memory was shot for awhile after starting meds. My reading was slow and it still is but after I read something I know what was read and in some places and things I can wrtie down what I read almost verbatum. Oh and as for spelling... Mine has sucked all my life and it still does. I can still get my points across people can still make out what I am saying. I would also suggest you get the My Epilepsy Diary located on this site. Watch the video it tells you how to use it and what it can do. You can give your neurologist permission to pull it up and look at it. If you do he can look at the different graphs and by doing that he can come up with possiable medications dosages and procedures which might get you seizure free. I hope this helps Joe

Welcome Scott What you posted

Submitted by just_joe on Thu, 2014-06-26 - 14:13
Welcome Scott What you posted can be in different types of seizures. The prescriptions you were given control seizures. A medication that works for one person may not for the next. Which is what happened with Depakote. All They could tell me is that I have a abnormal eeg reading in my left temporal lobe  They did everything they could to try and get an event out of me. But NOTHING   As for your systems those do happen and they did to me but after your body gets used to your medications many of those can go away. My memory was shot for awhile after starting meds. My reading was slow and it still is but after I read something I know what was read and in some places and things I can wrtie down what I read almost verbatum. Oh and as for spelling... Mine has sucked all my life and it still does. I can still get my points across people can still make out what I am saying. I would also suggest you get the My Epilepsy Diary located on this site. Watch the video it tells you how to use it and what it can do. You can give your neurologist permission to pull it up and look at it. If you do he can look at the different graphs and by doing that he can come up with possiable medications dosages and procedures which might get you seizure free. I hope this helps Joe

Welcome Scott What you posted

Submitted by just_joe on Thu, 2014-06-26 - 14:13
Welcome Scott What you posted can be in different types of seizures. The prescriptions you were given control seizures. A medication that works for one person may not for the next. Which is what happened with Depakote. All They could tell me is that I have a abnormal eeg reading in my left temporal lobe They did everything they could to try and get an event out of me. But NOTHING As for your systems those do happen and they did to me but after your body gets used to your medications many of those can go away. My memory was shot for awhile after starting meds. My reading was slow and it still is but after I read something I know what was read and in some places and things I can wrtie down what I read almost verbatum. Oh and as for spelling... Mine has sucked all my life and it still does. I can still get my points across people can still make out what I am saying. I would also suggest you get the My Epilepsy Diary located on this site. Watch the video it tells you how to use it and what it can do. You can give your neurologist permission to pull it up and look at it. If you do he can look at the different graphs and by doing that he can come up with possiable medications dosages and procedures which might get you seizure free. I hope this helps

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