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Latest trip to the ER
Wed, 03/18/2015 - 16:31I have had tonic/clinic seizures since I was a teen. A couple weeks ago I went to the ER for my seizures (turns out from hormones I was about to start my monthly) and they gave me a new script. Two weeks into taking it and my seizures changed. My boyfriend was scared at the changes (5 in one day) and back to the ER we went. The did a blood draw and took my vitals, blood pressure a little low heart rate high at 112-120 laying dow and it stayed like that the whe time I was there. They gave me one MIL adivan and I had a short episode that my boyfriend had also never seen before. The doctor got huffy and said it wasn't a seizure, they gave me another half of adivan and I had one more episode lasting less than a min. Looked the same as before, not normal. My sister and my boyfriend said the doctor told me to wake up rudly. The doctor pulled everyone out of the room and spoke to me alone. He stood over me arms crossed and in a not so nice tone, asked me what was really going on. At this point the adivan was fully kicking in and I was having a hard time communicating. I told him that I was scared and just wanted answers. He then proceeded to tell me that those were not seizures, and the medication would have prevented any kind of seizure. Basically telling me I was faking it. My family came in and he had the same demeanor with them, my sister being a nurse, tried to have a conversation with him be he wouldt hear anything she or my boyfriend had to say. I was promptly discharged. Confused and on the brink of tears from being treated in such a way. Is it possible to have mild seizure activity after having adivan or what he called non epileptic seizures? I'm just so upset by how I was treated he wouldn't even talk about possibilities of what it could have been because he thought I was faking it (I was not btw.) my boyfriend and sister have seen my seizures, my neurologist thinks it's seizures. Idk is it possible to have epileptic seizures and non epileptic seizures I the same person? This is the first I've heard of them and the doctor wouldn't even explain them to me.
Any advice would be greatly helpful, I'm still confused and upset by what happened. Am I the only one this has happened to?
welcome to the clubdepending
Submitted by Anonymous on Thu, 2015-03-19 - 17:46
welcome to the clubdepending on the ER and the doctors they have would also mean that some doctors in ER room don't know chit about peipelsy. They may bee good at setting bones or something else but unless they have specialized in epilepsy they cant tell you much of anything.I was taken to an ER here in Dallas. I had a cluster of simple partial seizures and knew I had them and all i needed was to go home and lay down. At the ER they ran blood tests. An ECG or EKG and said nothing or asked nothng about my heart. Even tho I have A-fib with intermitent atrial flutter. In other words they didn't know squat about my seizures ,ad they released me. Yes there are seizures and non epileptict seizures. http://nationalseizuredisordersfoundation.org/pnes The site is for Natinal Seizure Disorder foundation. SO some doctors may not know that there is a difference buut they are both seizure disorders. The foundation is trying to get all neurologist especially those specializing in epilepsy to get together and help with treatment for these people. What you need to do is discuss this issue with your neurologist. Depending on the length of time between those 5 seizures. It could have been a cluster. I know I can have a cluster because I have had them. Doc prescribed a rescue medication and it does stop the other seizures. SO ask him if those 5 seizures could have been a cluster and discuss the possiability of a rescue medication. I do hope you get the asistance you need Joe PS please come back and let us know how things went.