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Keppra or nighttime seizures?

Mon, 10/06/2014 - 12:38

~~My 17 year old daughter is unable to wake for school. This started in January 2014. Extreme fatigue, unresponsive when trying to wake her, sleeps from about 10pm until 10-11am or later. Currently on Keppra 1250mg twice daily, B6 50mg twice daily, Folic Acid 1mg twice daily, melatonin 1.5mg at night. Wakes with stomach pain, sore stomach muscles, nausea, occasional headache. Seen at Children's of Pittsburgh, multiple EEGs, video, ambulatory, routine - all show tendencies. No tonic clonic seizures since February 2012. She has been on Keppra since February 2012. Started at 750mg twice daily, but by spring of 2013 she had migraines and stomach pain in the afternoons after school that seemed to lead to the need to sleep for a very long time. It was suspencted that it was seizure activity. EEG confirmed the presence of seizure tendencies even after a Keppra increase to 1000mg twice daily, those episodes subsided. January 2014, it became impossible to wake her for school on several occasions. By spring of 2014 she was on homebound instruction from school because of her consistant inability to wake up for school and chronic fatigue. Now, fall of 2014, problem still exists. Given the stomach pain and sore stomach muscles it was suspected that she was again having seizures, but during the night. Her video EEG in the hospital in April 2014 showed a continued tendency for seizures, but they were unable to provoke one. Determined Keppra is doing its job to prevent manifestation of tonic clonic seizures, but no explanation for the continued, and worsening, inability to wake in the mornings. Had a 3 day ambulatory EEG last month, still waiting for results. Has ANYONE had this experience?? Is it possible that it is nighttime seizures? Or is it possible that she has too much Keppra? Needs a decrease? Med change? More B6? She has already missed about 60% of her junior year. She's an honor student with so much to look forward to - if only she could wake up. I've gone as far as actually sitting her up in bed to try to get her conscious again and she just lets out a tiny whimper, never opens her eyes, and falls back to the bed.

Comments

Gabby, I'm so sorry to hear

Submitted by Lainysmom on Wed, 2014-10-08 - 09:07
Gabby, I'm so sorry to hear that you go through this, but relieved that my daughter is not the only one. How do you know they are auras while you're sleeping? Keppra is working at keeping her seizures from happening physically, but she still has tendencies show on her EEGs.

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