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I'm panicking!
Thu, 02/09/2006 - 13:06I've read about others going in for VEEG countless times, yet, now that it's my turn, I am SCARED. I know, the process isn't painful. It's dull...I am prepared for that. What I'm mostly so afraid of is being away from my girls for 3-5 days. They can visit me in the hospital, but just thinking about it is heartwrenching! Adding the knowledge that they're gonna be messing w/ my meds again, and it scares the heck out of me!!
I know that I'm going to hopefully catch seizure activity, to see if it is localized to one specific area. The doctors seem to be leaning towards doing some type of surgery (which scares the heck out of me too), since I "seem to be SO sensitive to so many medications". The problem is, I don't *want* to have a seizure...I'm scared. Seizures scare me, plain and simple. So, I am not looking forward to the whole thing. Because, it seems, that whichever way it goes, things don't look too good.
Arrangements were just made today, and I go in tomarrow morning(yikes!!). Maybe that's better, at least I won't have too much time to stress about it, rather than waiting for weeks. I just need to share these thoughts and feelings, if you have any tips or insight let me know before Friday morning :)
Thanks,
Heather
Comments
Re: Re: I'm panicking!
Submitted by mommy2kyra on Thu, 2006-02-09 - 20:33
Thank you so much for responding, Barbie!
I appreciate your empathy and tips!! I knew that someone had a trick for removing the glue, but couldn't remember who. So, thanks also for sending me the link to Pam's recipe. Thank you for the hugs and well-wishes, I'll take em! (ha-ha)
Heather :)
Re: Re: Re: I'm panicking!
Submitted by spiz on Fri, 2006-02-10 - 09:40
Heather,
Hi sweetie! I'll admit it...I'm relieved you are going in. I have been so worried about you and the time you have had with your meds. I know you will still be the one having a maddening time with what they decide to do with your meds, but by being in having the VEEG, there will also be more time to have the Doctor's ear in discussing this. You're in my prayers, heart and thoughts! Smiles and Hugs!!!
-Spiz
Re: I'm panicking!
Submitted by txrhb1 on Thu, 2006-02-09 - 16:51
Awww Heather dear, I am so sorry that you are having to go through all of this, and can certainly understand your feelings. It is so hard to be away from our children. It is also very understandable that you don't "want" to have a seizure. I went through the same thing last year when I went in for my VEEG. Just the thought of being in the hospital was scary to me. A couple of tips for ya: 1. Take some snacks to keep you filled up 2. Make sure and wear button down shirts, rather than pullovers 3. Books, puzzles, magazines, all help to pass the time more quickly 4. take a look at Pam's recipe for getting the glue out of your hair after you're unhooked - it's at http://my.epilepsy.com/?q=node/960820 Relax and try not to panic - you'll be okay. I hope things work out, and you are not in for long. My thoughts and prayers are with you darling !! ((( hugs ))), Barbie *************************************** "We are each of us angels with only one wing, and we can fly only by embracing each other." -lucian de crescenzo
Awww Heather dear, I am so sorry that you are having to go through all of this, and can certainly understand your feelings. It is so hard to be away from our children. It is also very understandable that you don't "want" to have a seizure. I went through the same thing last year when I went in for my VEEG. Just the thought of being in the hospital was scary to me. A couple of tips for ya: 1. Take some snacks to keep you filled up 2. Make sure and wear button down shirts, rather than pullovers 3. Books, puzzles, magazines, all help to pass the time more quickly 4. take a look at Pam's recipe for getting the glue out of your hair after you're unhooked - it's at http://my.epilepsy.com/?q=node/960820 Relax and try not to panic - you'll be okay. I hope things work out, and you are not in for long. My thoughts and prayers are with you darling !! ((( hugs ))), Barbie *************************************** "We are each of us angels with only one wing, and we can fly only by embracing each other." -lucian de crescenzo