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I think it's all over ...
Tue, 12/26/2006 - 06:51Hi Guys,
I'm back. Have been a bit quite latley. Not sure if I belong here any more.
Well, I had my 5 hour VEEG and then a 5 day amulatory EEG. Results came back normal. So I am still left with my inital 20 minute EEG that came back irregular. Although, I am now told that this inital test is deemed 'wrong', due to the latest EEG's coming back normal.
Mind you, I have predicted the results of all 3 EEG's due to how I felt at the time.
WHAT THE HELL DO I DO NOW? Not one question has been answered. I thought at the very least that if they came back normal my Neuro might discuss other options with me, or other possibilities. On my inital visit to my Neuro he said 'We have to get you a formal diagnosis. You can't go on living life like this.' and 'Yes, that sounds like Simple and Partial Complex Siezuires.'. NOW - He doesn't even really want to see me for a follow up appointment. I was told about my last results from his receptionist??? She said he would sent a letter to my GP?
Mind you - with all the above, I ammmmm feeling better. Over the last two months I have been on the improve and I am slowly getting back to work etc. So I suppose I shouldn't really complain. Problem is, if this all happens again - when I am bad ... I am really bad - to sick to help myself. So what do you all think? What should I do? Is this right? This CAN'T be right.
Please help me.
Comments
Re: I think it's all over ...
Submitted by heidi on Sat, 2006-12-30 - 20:49
I agree. Get a second opinion. I had a regular EEG that came back normal, and since then, my neurologist has cancelled my scheduled video EEGs twice, and has told me he no longer thinks I am having partial seizures. But I'm still having something, and I can't live like this, so I'm going to get a second opinion. I have to go 8 hours away to do it, but c'est la vie. Hang in there!
Re: Re: I think it's all over ...
Submitted by Bedge on Sun, 2006-12-31 - 19:34
It's just awful. Now I am doubting myself and feel completly lost. I finally thought I was going to get help. Now it's been snatched away. As middnight hit last night, tears started running down my cheek. 2006 was such a crappy year, am happy to see the end of it.
There's something wrong with me. I just want to get better but no one can help me.
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Peace, Love, Mung Beans
Re: I think it's all over ...
Submitted by wldhrt13 on Tue, 2006-12-26 - 17:19
Becc, you get a second opinion is what you do. It can't hurt. Even a third opinion if necessary. If your GUT tells you this is seizure activity, then you have to go with your gut. GUT= Guaranteed Undeniably True p.s. I swear our lives are paralleling again because I have a feeling my AEEG results are going to come back normal, I had NO problems whilst it was on...but if they had sleep deprived me, then the sparks would have flown, that or drinking too much caffeine really sets my events into motion pamm