Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
I feel lost in the woods!
Sat, 06/16/2007 - 09:09my neuro is too busy! nurses call me up but tell me they can't reveal any inforo to me! big dark secret? So I got my own MRI
it says I have thinning of the wall of the mammmillary body and the unicus. and I have flair at high frequency noted but most likely of high frequency of small vessells.
but other wise a normal mri? this doesnt sound so normal to me
it is very lengthy and I seize still.
I first say my neuro who is at a very busy unv who has a very short personality with me. I always feel rather put down when she talks to me. And she is always in a rush to get away from me. in a hurry.
Can someone please tell me how they would feel if they got an mri with a report as such, would you have some type of concerns?
I do have a new doctor coming up that is why I got my mri report I think I will do better get and I will request the images as well to be transferred as well!!
wenny
Comments
Re: Re: I feel lost in the woods!
Submitted by wenny on Sat, 2007-06-16 - 12:07
huggss to you so very much!!
your support makes me feel sooo much better!!!
I feel like I am doing the right thing!!
I am taking alll my medical reports with me and my MRI report
and Im trying to even get my Mri images too!!
and Im writting all my questions down!!
so and I want my new epileptologist to answer me.
I have sneeking feeling he is better!!
I also am suffering from post traumatic stress disorder I lost mom
during katrina I watched her unnec die during the storm. too many traumas for me! Im ok now just trying to get my act together and this neuro I got is good but is so darn cold hearted I cant deal with that!
thanks so much!! I will let you know!
Re: I feel lost in the woods!
Submitted by banffgirl on Sat, 2007-06-16 - 10:35
wenny, if i read that i would be concerned to and search the internet on what it meant. i always hear mine are normal, no tumors. but ok wha t does that mean. so i took my last mri from my reg neuro to my epi spec and he looked it over and said it looked good. he said thats its very normal for a noncontroled epileptic even with some damage from too many seizures to have a normal looking mri. my eeg is his way of gaging me. so wenny if i was told that i would want a whole bunch of answers. i think you are right to switch docs. if they dont have time for you they dont have time to diagnose you fully. she doesnt sound caring at all. good luck to you and keep me informed, i'll be praying for you. your freind, sylvia aka banffgirl