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Grew out of seizures within months?!

Wed, 05/24/2017 - 07:29
Last September I noticed my infant daughter (11 months old at the time) was having these staring episodes. She would stop in her tracks, start staring into space, make chewing motions. The episodes were not very frequent, 5-7 times a week, and lasted about 25 seconds. We took her to a neurologist and he said to bring her in for an EEG if they start happening. She didn't have any episodes after that appointment for about a month. Then, in November, she was started having more intense episodes where she would start staring, be a little conscience (I would say half way with it), then start staring, shaking on her left side, then would vomit, and fall asleep directly after. I ended up taking her to the closest children's hospital, she was admitted, and later diagnosed with atypical absence seizures by a different neurologist than the one we saw previously. She had had 15 of these episodes that day, 7 of which were caught on the EEG. She was put on kepra. About a month goes by and she starts waking at night and can't go back to sleep because her legs and body would make jerking movements when she was falling back to sleep. We had many nights of her screaming and screaming and were in and out of the ER. We saw her current neurologist in clinic (the one that she had her first appt with) and he said he was not convinced that she was having seizures at all from looking at her EEG and decided to take her off of the kepra. I thought he was crazy at first but now I am kind of thankful he did because she hasn't had another episode since the day she was diagnosed! Is this heard of? Growing out of seizures within months? Has anyone has a similar experience? If these weren't seizures then what the HECK were They? It still boggles my mind and although I am less worried now, I still get concerned. She is typically developing with no delays at this point,she is 19 months.

Comments

infant eegs can be an art

Submitted by Amy Jo on Wed, 2017-05-24 - 08:47
infant eegs can be an art form to read, unless the second doc was an epileptologist who specializes in infants, I wouldn't put a lot of faith in the atypical absence diagnosis. usually atypical absence is associated with severe epilepsies but not always. our daughter has atypical absence (and  other seizure types) but it isn't a severe epilepsy. and our epileptologist does specialize in reading eegs (although another epileptologist there is the best guy to see about infants, our child is not an infant). in our case the atypical absence showed up years after the initial seizures and changed the diagnosis significantly. sometimes with epilepsy it takes a while for the full story to emerge. so more info may come out later or you may never find out what those episodes were.

Thanks for your response!

Submitted by Mhinojosa12 on Wed, 2017-05-24 - 19:31
Thanks for your response! When I read that atypical absence seizures went along with other seizure types and they were common in cognitively and developmentally delayed people, I was, needless to say, very concerned. The neurologist that diagnosed her seemed unsure of his diagnosis even when he was telling me about the seizures. Her current neurologist, the one we saw first and in clinic after the diagnosis, I trust a lot more.To me, the episodes she was having seem more consistent with partial seizures. I guess only time will tell.

Thanks for your response!

Submitted by Mhinojosa12 on Wed, 2017-05-24 - 19:33
Thanks for your response! When I read that atypical absence seizures went along with other seizure types and they were common in cognitively and developmentally delayed people, I was, needless to say, very concerned. The neurologist that diagnosed her seemed unsure of his diagnosis even when he was telling me about the seizures. Her current neurologist, the one we saw first and in clinic after the diagnosis, I trust a lot more.To me, the episodes she was having seem more consistent with partial seizures. I guess only time will tell.

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